Research CP Patient-Centered and Patient Reported Outcomes Post Webinar Survey

Registrant Information

Our post webinar surveys are intended to reinforce learning and measure engagement. THERE ARE NO RIGHT OR WRONG ANSWERS SO DON'T WORRY IF YOU CANNOT RECALL WHICH ANSWER IS BEST. Please take a few moments to complete the webinar. Your answers will help us to understand how well we communicated and plan the agenda at the Research CP workshop in Chicago. Thank you!

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* 1. Your first name?

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* 2. Your last name?

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* 3. Your email address?

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* 4. Did you have any difficulty audio or video for the webinar?

Yes

Please briefly describe any difficulties

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* 5. Which of the following questions is not a patient-centered research question?

“Given my personal characteristics, conditions and preferences, what should I expect will happen to me?”

“What are my options and what are the potential benefits and harms of those options?”

“Which chemotherapy approaches are most effective in reducing the size of brain tumors?”

“How can clinicians and the care delivery systems they work in help me make the best decisions about my health and healthcare?”

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* 6. Examples of patient-reported outcomes include which of the following?

Pain

Anxiety

Fatigue

Satisfaction with health care

All of the above

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* 7. Many patient-reported outcome measures are highly reliable – some even more reliable than blood pressure assessments, for example.

True

False

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* 8. Which of the following are key roles for patients and caregivers in patient-centered research?

Serve as the voice of the patients with your condition.

Help the study team monitor the study and make sense of the findings.

Engage with other patients and caregivers.

All of the above are key roles for patients and caregivers in patient-centered research.

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* 9. Asking research questions that are directly informed by patients and caregivers is one way that CPRN is committing to making CP research patient-centered.

True

False

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* 1. Your first name?

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* 2. Your last name?

Question Title

* 3. Your email address?

Question Title

* 4. Did you have any difficulty audio or video for the webinar?

Question Title

* 5. Which of the following questions is not a patient-centered research question?

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* 6. Examples of patient-reported outcomes include which of the following?

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* 7. Many patient-reported outcome measures are highly reliable – some even more reliable than blood pressure assessments, for example.

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* 8. Which of the following are key roles for patients and caregivers in patient-centered research?

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* 9. Asking research questions that are directly informed by patients and caregivers is one way that CPRN is committing to making CP research patient-centered.

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* 10. Please let us know what you thought of the webinar overall?