Research CP Patient Registries Post Webinar Survey

Registrant Information

Our post webinar surveys are intended to reinforce learning and measure engagement. THERE ARE NO RIGHT OR WRONG ANSWERS SO DON'T WORRY IF YOU CANNOT RECALL WHICH ANSWER IS BEST. Please take a few moments to complete the webinar. Your answers will help us to understand how well we communicated and plan the agenda at the Research CP workshop in Chicago. Thank you!

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* 1. Your first name?

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* 2. Your last name?

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* 3. Your email address?

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* 4. Which are potential uses of a disease registry?

Characterizing a patient population

Contact information for research studies

Providing preliminary data for studies

Finding practice variation

All of the above

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* 5. Provide two distinguishing factors between a clinical registry and a patient reported registry. (Check all that apply)

Clinical registries use data entered from the hospital / clinic setting.

Clinical registry data is entered by a physician, nurse or clinical research assistant.

Patient registry data is entered by people in the community.

Patient registries often focus on patient reported outcomes.

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* 6. What is CPRN doing that is unique in its support of both registry types?

Gathering data for people with cerebral palsy

Gathering data through the electronic medical record

Linking the data in the two types of registries

Collecting only adult registry data

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* 7. Please let us know what you thought of the webinar overall?

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* 8. Did you have any difficulty audio or video for the webinar?

Yes

Please briefly describe any difficulties