Healthcare providers recommended by families

Introduction

Thank you for recommending members of your loved one's healthcare team to our ASXL Care Directory. Please submit providers with whom you have had a positive experience and who you would recommend to other families. These providers do not need to treat multiple individuals with ASXL syndromes.

You may submit up to 15 healthcare providers per form submission. If you have more than 15 to recommend, please submit the form a second time.

Question Title

* 1. Your contact information

Name

Email Address

Question Title

* 2. What is your connection to someone with an ASXL syndrome?

Parent/primary caregiver

Other relative

Other (please specify)

Question Title

* 3. Which ASXL syndrome does your loved one have?

ASXL1/Bohring-Opitz Syndrome

ASXL2/Shashi-Pena Syndrome

ASXL3/Bainbridge-Ropers Syndrome

Provider 1 information

Question Title

* 4. Provider contact information

Provider name

Provider institution

City/Town

State/Province

Country

Question Title

* 5. Provider's specialty

Question Title

* 6. May we reach out to this provider to invite them to join our email list and connect with other providers who treat individuals with ASXL syndromes?

Yes

Question Title

* 7. Do you have an additional provider to include?

Yes