As part of the PFMD Patient Engagement Toolkit, we are collecting practical tips and learnings about what to do and not to do in patient engagement. The way we have organised this form supports the Patient Engagement Quality Guidance and the Quality Criteria presented here. 

WE'RE LOOKING FOR
- lessons learned from your previous patient engagement projects,
- practical tips that others might benefit from, or should think about when doing patient engagement

STRUCTURE
This form is structured in the same way as the 7 Quality Criteria from the Patient Engagement Quality Guidance. If your tips are useful at any phase of the medicines development, or under any Quality Criteria check the last section of the form. 

If you have any questions, suggestions or feedback, please send them to pfmd@thesynergist.org

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* 1. Which stakeholder group do you belong to?

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* 2. Shared purpose
This refers to the project’s aims and outcomes that all stakeholders taking part should agree on before starting the project.

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* 3. Respect and accessibility
This refers to (1) respecting each other, and respectful interactions within the project to be established among partners, and (2) openness to and the inclusion of individuals and communities(to the project) without discrimination.

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* 4. Representativeness of stakeholders
This refers to the need for clearly agreed, and ideally co-created roles and responsibilities, in writing, addressing that all aspects of project needs will be established upfront and revisited regularly.

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* 5. Roles and responsibilities
This refers to the need for clearly agreed, and ideally co-created roles and responsibilities, in writing, addressing that all aspects of project needs will be established upfront and revisited regularly.

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* 6. Capacity and capability for engagement
This refers to (1) having relevant and dedicated resources from all stakeholders (for example, providing a dedicated point of contact by the sponsor and having allocated sufficient time by all stakeholders to allow genuine engagement); and (2) capabilities for all stakeholders to enable meaningful engagement (for example, the level of knowledge, expertise and training stakeholders might need to deliver activities throughout the project).

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* 7. Transparency in communication and documentation
This refers to the establishing of communication plan and ongoing project documentation that can be shared with stakeholders. Communication among stakeholders must be open, honest and complete. In addition, adequate up-to-date documentation must facilitate communication with all stakeholders throughout the project.

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* 8. Continuity and sustainability
This refers to the smooth progression of the project, as well as efforts to maintain ongoing relationship with stakeholders. Consideration should be given for the role of stakeholders beyond a single project.

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* 9. Other general tips
Please write here any general tips about how to do patient engagement. If possible, please specify if they fit in a specific phase in the medicines development continuum. 

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* 10. Sign up for newsletter and updates by clicking on the option below and providing your name and email address

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* 11. Your email address

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