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Pediatric Pain Warriors
U.S. Pain will be launching its Pediatric Pain Warriors Program in the coming weeks. We are looking for feedback from kids and families to understand how to best serve them.
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1.
Which best describes you?
(Required.)
I am under 18 and living with pain
I am a parent or caregiver of someone under 18 who lives with pain
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2.
In your family, how old is the child (or children) who lives with pain?
(Required.)
0-6 years old
7-12 years old
13-18 years old
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3.
What information would help you the most on your family’s pain journey?
(Required.)
Webinars on different topics
Brochures and resources to take to school and drs office
Online support groups for teenagers
Online support group for parents
Retreats/get togethers for families
Being partnered with another similar family to help support each other
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4.
What is the biggest resource you are currently missing?
(Required.)
How to properly advocate within the school system
How to properly advocate with doctors
Complimentary therapy information
Pediatric pain management information
Understanding your rights as a parent and patient
Help dealing with financial challenges
How to tell/share your story
Emotional support for children and/or families
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5.
What types of webinars would you like to see or participate in?
(Required.)
Advocating- drs, family members, schools and legislators
Complimentary therapies
Pediatric pain management options
Meditation
Self-care for parents
Self-care for children
Managing the family unit with a chronic pain child
Coping with self-confidence issues, feeling different, and/or bullying
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6.
What is your greatest need?
(Required.)
Emotional support
Community advocacy
In person meet ups
Information on treating pediatric pain
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7.
Are you currently advocating to your state and local representatives on health-related issues?
(Required.)
Yes
No
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8.
What state are you located in?
(Required.)
AK
AL
AR
AZ
CA
CO
CT
DE
FL
GA
HI
IA
ID
IL
IN
KS
KY
LA
MA
MD
ME
MI
MN
MO
MS
MT
NC
ND
NE
NH
NJ
NM
NV
NY
OH
OK
OR
PA
RI
SC
SD
TN
TX
UT
VA
VT
WA
WI
WV
WY
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9.
Does the person under 18 and living with pain have any siblings?
(Required.)
Yes
No
10.
If you have any other comments or suggestions for U.S. Pain's Pediatric Pain Warrior Program, please enter them here.
11.
If you are interested in staying connected on upcoming programs and services offered by the Pediatric Pain Warrior Program, please leave your email here.
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