Learning from patients is the goal of “Share Your Story.” SIDM wants to understand the patient experience of getting a diagnosis. What worked? What did not work? By hearing from you — as a patient or a family member — we hope to increase our understanding of ways to improve diagnosis.

At times, SIDM receives requests for patient stories. Providing your name and contact information is entirely optional. At the end of the "Share Your Story" request, we will ask whether you would like your story included — either with or without your name — in learning materials, for public awareness, funding proposals, and other aspects of SIDM’s mission.