Patient Problems Survey

Share for better care!!
Short survey ( 3 minutes avg completion time)

"Just because it is stormy now doesn't mean you aren't headed for sunshine..."

We are building a mobile App to help patients who are struggling with emotionally demanding chronic and rare medical conditions. Your feedback will help us define problem correctly so we can build solutions that can make a difference.

When you share experiences, everyone heals!
Please forward to any patient you may know. You can reach me at randeep.bagga@gmail.com for any feedback or questions.

Note*- If you have multiple conditions in the family, please fill survey for each condition if possible.

Question Title

* 1. Please select medical conditions applicable to you or family member.

Autism

Type 1 diabetes

Cancer (lung, colon, breast, prostrate, brain, blood etc.)

Heart disease

Stroke

Chronic lung disease

Asthma

Attention Deficit Disorder

Depression

Hypothyroidism

Mental health

Migraine

Kidney related (nephritis, nephrotic syndrome, nephrosis )

Infertility/Reproductive Health

Severe chronic pain (Arthritis, Knee, back etc.)

Osteoarthritis

Alzheimer's disease

Multiple Sclerosis

Injuries from walk/biking/car accident(e.g. broken neck)

Children's developmental issues

Severe allergy

Chlamydia, HIV or other sexually transmitted disease

Other (please specify)

Question Title

* 2. Please list problem areas, if any, related to your treatment path.

No conventional treatment available.

Treatment is available but not working for me or has side effects.

Difficulty in adjusting to new lifestyle after treatment. (Please specify below how we can make your lifestyle better.)

Difficulty finding doctors for alternative treatments.

Difficulty finding patients with similar conditions.

Difficulty with diet and exercise management.

Need 24/7 similar patients forum or support groups for frequent queries.

Staying updated with latest research/journals/news.

Looking for "best" doctor.

High cost of treatment (Insurance has fine print. Wish I could understand that.)

I need medical loan.

I need service to take complete care of patient when primary care giver is away.

Medical fraud (e.g. unnecessary lab tests)

Other (please specify problem areas and/or ways to make your lifestyle better)

Question Title

* 3. What steps do you currently take to solve your problems?

I try alternative treatments (acupuncture, herbal medicine, etc.)

I try home remedies, exercises or diet to make treatment effective or manage side effects.

I ask anyone (friends, forums, support groups) who can help share my pain.

I talk to patients with my conditions.

I keep the pain to myself as I want to be anonymous.

I donate to find a cure for the disease.

Other (please specify)

Question Title

* 4. On a scale of 1(less important) to 9 (very important), please rank each option in order of importance.

I want to find out about effective alternative treatments.

I want to connect with similar patients locally or anywhere to manage my disease.

I want to understand insurance coverage details before treatment.

I want to be updated with all medical news/research and participate in global forums.

I want to find the best hospital/doctor in my city or globally.

I want to book a doctor appointment or speak to a doctor from comfort of my home.

I want help with diet, home remedies and exercises that can heal.

I want to get a second opinion on my condition.

I want to remain anonymous and yet connected to healthcare community.

Question Title

* 5. Please name some of the medical blogs/forums, magazines or websites that you visit frequently?

Medical Blogs/forums

Facebook Pages

Magazines

Websites

Support Groups

Other

Question Title

* 6. What specific content do you look for in such blogs/websites?

Alternative treatments

Information on diet, home remedies and exercises

Prescription details/side effects

Latest research relevant to my condition

Find the best doctor

Feedback on managing condition better

Patient experiences/stories

Similar patients

Other (What's on your mind?)

Question Title

* 7. Please select condition-related events, if any, that you regularly attend?

Walk/bike/race fundraisers

Blood drive

Medical seminars

Clinical trials

Other (What's on your mind?)

Question Title

* 8. What kind of events (other than mentioned above) would you be interested in attending?

Opportunity to connect with similar patients

Finding about alternative treatments

Listen to personal stories of patients

Hear medical specialists speak

Learn about insurance coverage from similar patients

Meditation/exercises to heal

Other (What's on your mind?)

Question Title

* 9. If you are provided with a mobile healthcare app, which problems should it solve?

Problem 1

Problem 2

Problem 3

Problem 4

Question Title

* 10. Please provide following (Optional- We would love to send you link to try our app and get your feedback. Always free for patients). Also please forward this survey to any patient you may know.

Country ( India, USA, Canada, Other)