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Calling everyone with a Sturge-Weber Diagnosis

Be part of the Group!

The Sturge-Weber Foundation wants to know how many people are diagnosed with Sturge-Weber Syndrome in the World!  Please fill out our survey and let's update our numbers today. Thank you for time.

*This is for internal use at the SWF
1.Are you the patient or caregiver?
2.Do you have a diagnosis of Sturge Weber Syndrome?
3.Do you have a port-wine birthmark?
4.Do you have a diagnosis of glaucoma?
5.Have you experienced seizures? 
6.Have you experienced migraines or headaches?
7.Do you want to be a member of the Birthday Club?
8.Please update information for the patient so we can update our records.
9.What is the best way to communicate with you?
10.What topics do you want to hear more about?
11.Demographics:  What is your gender?
12.Which race/ethnicity best describes you? (Please choose only one.)