2017 Pathlight Readership Survey

Welcome to the readership survey!

Thank you for taking the time to complete this survey. Your input is invaluable to PHA and will help directly inform the content of Pathlight moving forward.

This 35-question survey is anonymous, so we encourage you to answer as openly and honestly as possible. Please feel free to forward this survey to any friends and family members who are also involved in the PH community: we want to hear from everyone.

If you have need any assistance or have any questions, please do not hesitate to contact Pathlight's editor-in-chief, Dora Nagy, at DoraN@PHAssociation.org.

Question Title

* 1. What is your connection to pulmonary hypertension (PH)?

PH patient

Caregiver of a PH patient

Parent of a child under 18 with PH

Family member of a PH patient

PH-treating medical professional

PH researcher

Other (please specify)

Question Title

* 2. What is your gender?

Female

Male

Question Title

* 3. What is your age range?

60 and older

50 to 59

40 to 49

30 to 39

18 to 29

17 and younger

Question Title

* 4. In what region of the United States do you live?

Northeast

Midwest

Southeast

Southwest

West

I don't live in the continental United States

I don't live in the United States

Question Title

* 5. What level of education have you completed?

Doctoral degree

Master's degree

Bachelor's degree

Some college

High School diploma or equivalent

Less than High School

Question Title

* 6. What is your marital status?

Single

Married or living together

Separated or divorced

Widowed

Question Title

* 7. What best describes your employment status?

Full-time

Part-time

Student

Disabled

Unemployed

Homemaker

Retired

Question Title

* 8. How do you receive health insurance?

Private health insurance

Medicare or Indian Health Services

Medicate or state program

Tricare or other military health plan

Other (please specify)

Question Title

* 9. At what age were you (or your loved one) diagnosed with PH?

60 and older

50 to 59

40 to 49

30 to 39

18 to 29

17 and younger

Question Title

* 10. How long did it take for you (or your loved one) to receive an accurate diagnosis of PH?

Three or more years

One to two years

Six months to one year

Less than six months

Question Title

* 11. How long have you known that you have PH? or How long has your loved one known that they have PH?

Eight or more years

Three to seven years

One to two years

Six months to one year

Less than six months

Question Title

* 12. How do you generally acquire information about PH?

	All information	Most information	Some information	No information	Not applicable
Pathlight magazine	Pathlight magazine All information	Pathlight magazine Most information	Pathlight magazine Some information	Pathlight magazine No information	Pathlight magazine Not applicable
PHANews	PHANews All information	PHANews Most information	PHANews Some information	PHANews No information	PHANews Not applicable
PHA social media	PHA social media All information	PHA social media Most information	PHA social media Some information	PHA social media No information	PHA social media Not applicable
PHA website	PHA website All information	PHA website Most information	PHA website Some information	PHA website No information	PHA website Not applicable
Support Groups	Support Groups All information	Support Groups Most information	Support Groups Some information	Support Groups No information	Support Groups Not applicable
Other patients or caregivers	Other patients or caregivers All information	Other patients or caregivers Most information	Other patients or caregivers Some information	Other patients or caregivers No information	Other patients or caregivers Not applicable
Your health care provider	Your health care provider All information	Your health care provider Most information	Your health care provider Some information	Your health care provider No information	Your health care provider Not applicable
Other organizations	Other organizations All information	Other organizations Most information	Other organizations Some information	Other organizations No information	Other organizations Not applicable

Other (please specify)

Question Title

* 13. Where do you receive most of your information about the Pulmonary Hypertension Association (PHA)?

	All information	Most information	Some information	No information	Not applicable
Pathlight	Pathlight All information	Pathlight Most information	Pathlight Some information	Pathlight No information	Pathlight Not applicable
PHANews	PHANews All information	PHANews Most information	PHANews Some information	PHANews No information	PHANews Not applicable
PHA social media	PHA social media All information	PHA social media Most information	PHA social media Some information	PHA social media No information	PHA social media Not applicable
PHA website	PHA website All information	PHA website Most information	PHA website Some information	PHA website No information	PHA website Not applicable
Support Groups	Support Groups All information	Support Groups Most information	Support Groups Some information	Support Groups No information	Support Groups Not applicable
Other patients or caregivers	Other patients or caregivers All information	Other patients or caregivers Most information	Other patients or caregivers Some information	Other patients or caregivers No information	Other patients or caregivers Not applicable
Your heath care provider	Your heath care provider All information	Your heath care provider Most information	Your heath care provider Some information	Your heath care provider No information	Your heath care provider Not applicable
Other organizations	Other organizations All information	Other organizations Most information	Other organizations Some information	Other organizations No information	Other organizations Not applicable

Other (please specify)

Question Title

* 14. How often do you read Pathlight?

Every issue

Most issues

Occasional issues

Never read an issue

Question Title

* 15. How much of Pathlight do you typically read?

All of it

Most of it

Some of it

None of it

Question Title

* 16. How much total time do you typically spend on each issue?

Two or more hours

One to two hours

30 to 59 minutes

10 to 29 minutes

one to nine minutes

Do not read it

Question Title

* 17. What is your favorite section of Pathlight? (check all that apply)

QuickTakes

Letters from the Editor and/or Chair

Making Connections

Health Matters

Advancing the Cause

Events calendar and recap

Question of the Quarter

Other (please specify)

Question Title

* 18. How do you prefer to read Pathlight?

In print

Online

Both

Question Title

* 19. If there were additional content from Pathlight available only online, how likely are you to go the PHA website and read it?

Not at all likely

A little

Moderately

Very likely

Question Title

* 20. Please rate your interest in the following topics most frequently in the Making Connections section of Pathlight:

	Very interested	Interested	Somewhat interested	Not interested	No opinion
Stories about diagnosis	Stories about diagnosis Very interested	Stories about diagnosis Interested	Stories about diagnosis Somewhat interested	Stories about diagnosis Not interested	Stories about diagnosis No opinion
Lifestyle content and tips	Lifestyle content and tips Very interested	Lifestyle content and tips Interested	Lifestyle content and tips Somewhat interested	Lifestyle content and tips Not interested	Lifestyle content and tips No opinion
Coping tips and guides	Coping tips and guides Very interested	Coping tips and guides Interested	Coping tips and guides Somewhat interested	Coping tips and guides Not interested	Coping tips and guides No opinion
Stories about families	Stories about families Very interested	Stories about families Interested	Stories about families Somewhat interested	Stories about families Not interested	Stories about families No opinion
Stories about teens and children managing their PH	Stories about teens and children managing their PH Very interested	Stories about teens and children managing their PH Interested	Stories about teens and children managing their PH Somewhat interested	Stories about teens and children managing their PH Not interested	Stories about teens and children managing their PH No opinion
Stories about caregivers	Stories about caregivers Very interested	Stories about caregivers Interested	Stories about caregivers Somewhat interested	Stories about caregivers Not interested	Stories about caregivers No opinion
Stories about the international PH community	Stories about the international PH community Very interested	Stories about the international PH community Interested	Stories about the international PH community Somewhat interested	Stories about the international PH community Not interested	Stories about the international PH community No opinion
Stories about people with associated conditions	Stories about people with associated conditions Very interested	Stories about people with associated conditions Interested	Stories about people with associated conditions Somewhat interested	Stories about people with associated conditions Not interested	Stories about people with associated conditions No opinion
Stories that focus on men with PH	Stories that focus on men with PH Very interested	Stories that focus on men with PH Interested	Stories that focus on men with PH Somewhat interested	Stories that focus on men with PH Not interested	Stories that focus on men with PH No opinion
Support Groups and services	Support Groups and services Very interested	Support Groups and services Interested	Support Groups and services Somewhat interested	Support Groups and services Not interested	Support Groups and services No opinion
Volunteer spotlights	Volunteer spotlights Very interested	Volunteer spotlights Interested	Volunteer spotlights Somewhat interested	Volunteer spotlights Not interested	Volunteer spotlights No opinion
PHA resources and materials	PHA resources and materials Very interested	PHA resources and materials Interested	PHA resources and materials Somewhat interested	PHA resources and materials Not interested	PHA resources and materials No opinion
PHA patient and caregiver programs and services	PHA patient and caregiver programs and services Very interested	PHA patient and caregiver programs and services Interested	PHA patient and caregiver programs and services Somewhat interested	PHA patient and caregiver programs and services Not interested	PHA patient and caregiver programs and services No opinion

Question Title

* 21. Please rate your interest in the following topics on health and medical advancements most frequently found in the Health Matters section of Pathlight:

	Very interested	Interested	Somewhat interested	Not interested	No opinion
Advancements in research	Advancements in research Very interested	Advancements in research Interested	Advancements in research Somewhat interested	Advancements in research Not interested	Advancements in research No opinion
New and novel therapies	New and novel therapies Very interested	New and novel therapies Interested	New and novel therapies Somewhat interested	New and novel therapies Not interested	New and novel therapies No opinion
Clinical trials	Clinical trials Very interested	Clinical trials Interested	Clinical trials Somewhat interested	Clinical trials Not interested	Clinical trials No opinion
Associated diseases	Associated diseases Very interested	Associated diseases Interested	Associated diseases Somewhat interested	Associated diseases Not interested	Associated diseases No opinion
Stories about health care professionals who treat PH	Stories about health care professionals who treat PH Very interested	Stories about health care professionals who treat PH Interested	Stories about health care professionals who treat PH Somewhat interested	Stories about health care professionals who treat PH Not interested	Stories about health care professionals who treat PH No opinion
Tips from health care professionals ("Ask the Expert")	Tips from health care professionals ("Ask the Expert") Very interested	Tips from health care professionals ("Ask the Expert") Interested	Tips from health care professionals ("Ask the Expert") Somewhat interested	Tips from health care professionals ("Ask the Expert") Not interested	Tips from health care professionals ("Ask the Expert") No opinion
Information about access to health insurance	Information about access to health insurance Very interested	Information about access to health insurance Interested	Information about access to health insurance Somewhat interested	Information about access to health insurance Not interested	Information about access to health insurance No opinion
Pulmonary Hypertension Care Centers (PHCCs)	Pulmonary Hypertension Care Centers (PHCCs) Very interested	Pulmonary Hypertension Care Centers (PHCCs) Interested	Pulmonary Hypertension Care Centers (PHCCs) Somewhat interested	Pulmonary Hypertension Care Centers (PHCCs) Not interested	Pulmonary Hypertension Care Centers (PHCCs) No opinion
Pulmonary Hypertension Association Registry (PHAR)	Pulmonary Hypertension Association Registry (PHAR) Very interested	Pulmonary Hypertension Association Registry (PHAR) Interested	Pulmonary Hypertension Association Registry (PHAR) Somewhat interested	Pulmonary Hypertension Association Registry (PHAR) Not interested	Pulmonary Hypertension Association Registry (PHAR) No opinion
Research grants and awards	Research grants and awards Very interested	Research grants and awards Interested	Research grants and awards Somewhat interested	Research grants and awards Not interested	Research grants and awards No opinion
PHA programs for health care professionals	PHA programs for health care professionals Very interested	PHA programs for health care professionals Interested	PHA programs for health care professionals Somewhat interested	PHA programs for health care professionals Not interested	PHA programs for health care professionals No opinion
PHA programs for patients and caregivers	PHA programs for patients and caregivers Very interested	PHA programs for patients and caregivers Interested	PHA programs for patients and caregivers Somewhat interested	PHA programs for patients and caregivers Not interested	PHA programs for patients and caregivers No opinion

Question Title

* 22. Please rate your interest in the following topics on advocacy and awareness most frequently found in the Advancing the Cause section of Pathlight:

	Very interested	Interested	Somewhat interested	Not interested	No opinion
Legislative updates (local)	Legislative updates (local) Very interested	Legislative updates (local) Interested	Legislative updates (local) Somewhat interested	Legislative updates (local) Not interested	Legislative updates (local) No opinion
Legislative updates (national)	Legislative updates (national) Very interested	Legislative updates (national) Interested	Legislative updates (national) Somewhat interested	Legislative updates (national) Not interested	Legislative updates (national) No opinion
PHA advocacy initiatives	PHA advocacy initiatives Very interested	PHA advocacy initiatives Interested	PHA advocacy initiatives Somewhat interested	PHA advocacy initiatives Not interested	PHA advocacy initiatives No opinion
PHA awareness activities	PHA awareness activities Very interested	PHA awareness activities Interested	PHA awareness activities Somewhat interested	PHA awareness activities Not interested	PHA awareness activities No opinion
PH community awareness acitivities	PH community awareness acitivities Very interested	PH community awareness acitivities Interested	PH community awareness acitivities Somewhat interested	PH community awareness acitivities Not interested	PH community awareness acitivities No opinion
Volunteer advocate spotlights	Volunteer advocate spotlights Very interested	Volunteer advocate spotlights Interested	Volunteer advocate spotlights Somewhat interested	Volunteer advocate spotlights Not interested	Volunteer advocate spotlights No opinion
Tips on how to advocate for PH community	Tips on how to advocate for PH community Very interested	Tips on how to advocate for PH community Interested	Tips on how to advocate for PH community Somewhat interested	Tips on how to advocate for PH community Not interested	Tips on how to advocate for PH community No opinion
PH community grant and awards (e.g., The Lantos Grant)	PH community grant and awards (e.g., The Lantos Grant) Very interested	PH community grant and awards (e.g., The Lantos Grant) Interested	PH community grant and awards (e.g., The Lantos Grant) Somewhat interested	PH community grant and awards (e.g., The Lantos Grant) Not interested	PH community grant and awards (e.g., The Lantos Grant) No opinion

Question Title

* 23. Please rate your interest in learning more about fundraising:

	Very interested	Interested	Somewhat interested	Not interested	No opinion
Donor profiles	Donor profiles Very interested	Donor profiles Interested	Donor profiles Somewhat interested	Donor profiles Not interested	Donor profiles No opinion
Information on joining a giving society (e.g., Legacy Society, Sustainer's Circle)	Information on joining a giving society (e.g., Legacy Society, Sustainer's Circle) Very interested	Information on joining a giving society (e.g., Legacy Society, Sustainer's Circle) Interested	Information on joining a giving society (e.g., Legacy Society, Sustainer's Circle) Somewhat interested	Information on joining a giving society (e.g., Legacy Society, Sustainer's Circle) Not interested	Information on joining a giving society (e.g., Legacy Society, Sustainer's Circle) No opinion
Donating to PHA	Donating to PHA Very interested	Donating to PHA Interested	Donating to PHA Somewhat interested	Donating to PHA Not interested	Donating to PHA No opinion
PHA fundraising events and activities	PHA fundraising events and activities Very interested	PHA fundraising events and activities Interested	PHA fundraising events and activities Somewhat interested	PHA fundraising events and activities Not interested	PHA fundraising events and activities No opinion
PH community fundraising events and activities	PH community fundraising events and activities Very interested	PH community fundraising events and activities Interested	PH community fundraising events and activities Somewhat interested	PH community fundraising events and activities Not interested	PH community fundraising events and activities No opinion
The impact of funds raised	The impact of funds raised Very interested	The impact of funds raised Interested	The impact of funds raised Somewhat interested	The impact of funds raised Not interested	The impact of funds raised No opinion
PHA sponsors	PHA sponsors Very interested	PHA sponsors Interested	PHA sponsors Somewhat interested	PHA sponsors Not interested	PHA sponsors No opinion

Question Title

* 24. Please rate your interest in learning more about events:

	Very interested	Interested	Somewhat interested	Not interested	No opinion
PHA's International PH Conference	PHA's International PH Conference Very interested	PHA's International PH Conference Interested	PHA's International PH Conference Somewhat interested	PHA's International PH Conference Not interested	PHA's International PH Conference No opinion
Events calendar	Events calendar Very interested	Events calendar Interested	Events calendar Somewhat interested	Events calendar Not interested	Events calendar No opinion
PHA awareness events	PHA awareness events Very interested	PHA awareness events Interested	PHA awareness events Somewhat interested	PHA awareness events Not interested	PHA awareness events No opinion
PHA advocacy events	PHA advocacy events Very interested	PHA advocacy events Interested	PHA advocacy events Somewhat interested	PHA advocacy events Not interested	PHA advocacy events No opinion
PH community events	PH community events Very interested	PH community events Interested	PH community events Somewhat interested	PH community events Not interested	PH community events No opinion
Scholarships to attend events or conferences	Scholarships to attend events or conferences Very interested	Scholarships to attend events or conferences Interested	Scholarships to attend events or conferences Somewhat interested	Scholarships to attend events or conferences Not interested	Scholarships to attend events or conferences No opinion
Tips for hosting your own event	Tips for hosting your own event Very interested	Tips for hosting your own event Interested	Tips for hosting your own event Somewhat interested	Tips for hosting your own event Not interested	Tips for hosting your own event No opinion
Volunteer spotlight profiles	Volunteer spotlight profiles Very interested	Volunteer spotlight profiles Interested	Volunteer spotlight profiles Somewhat interested	Volunteer spotlight profiles Not interested	Volunteer spotlight profiles No opinion

Question Title

* 25. Please rate the quality of Pathlight on the following:

	Excellent	Good	Average	Poor	Very poor	No opinion
Content	Content Excellent	Content Good	Content Average	Content Poor	Content Very poor	Content No opinion
Cover	Cover Excellent	Cover Good	Cover Average	Cover Poor	Cover Very poor	Cover No opinion
Ease of reading	Ease of reading Excellent	Ease of reading Good	Ease of reading Average	Ease of reading Poor	Ease of reading Very poor	Ease of reading No opinion
Layout and design	Layout and design Excellent	Layout and design Good	Layout and design Average	Layout and design Poor	Layout and design Very poor	Layout and design No opinion
Photography	Photography Excellent	Photography Good	Photography Average	Photography Poor	Photography Very poor	Photography No opinion
Other images and graphics	Other images and graphics Excellent	Other images and graphics Good	Other images and graphics Average	Other images and graphics Poor	Other images and graphics Very poor	Other images and graphics No opinion
Writing	Writing Excellent	Writing Good	Writing Average	Writing Poor	Writing Very poor	Writing No opinion

Other (please specify)

Question Title

* 26. Please identify the ways in which Pathlight strengthens your connection to PHA and the PH community. (check all that apply)

Serves as a source of continuing education and resources related to my quality of life

Encourages me to volunteer my time to the community

Encourages me to support PHA financially

Helps me to feel more in touch with the PH community

Provides useful tips on living with PH

Other (please specify)

Question Title

* 27. Please indicate your agreement with the following statement: "Pathlight strengthens my personal connection to PHA and the PH community."

Strongly agree

Agree

Disagree

Strong disagree

No opinion

Question Title

* 28. Please identify the ways in which Pathlight does not enhance your connection to PHA and the PH community. (check all that apply)

The magazine does not address topics of interest to me

The magazine does not reflect my experience of living with PH

The magazine is not a useful source of information about PH

The magazine appears to be primarily a fundraising tool

Other (please specify)

Question Title

* 29. What actions have you taken because of reading Pathlight? (check all that apply)

Attended an event

Attended an educational program

Attended PHA's International PH Conference

Volunteered for an event

Fundraised for PHA

Donated to PHA

Requested resources from PHA

Recommended PHA to a patient or caregiver

Discussed or forwarded an article or issue

Saved an article or issue for reference

Visited the PHA website

Signed up for PHANews

Signed up for myPHA

Joined a Support Group

Started a Support Group

Advocated on behalf of the PH community

No action taken

Other (please specify)

Question Title

* 30. To what degree do you consider Pathlight to be a credible source of information about PH?

Consistently provides accurate and objective information about advancements made in PH treatment and care

Does not provide enough up-to-date information about advancements in PH treatment and care

Provides no information on relevant issues related to advancement in PH treatment and care

No opinion

Question Title

* 1. What is your connection to pulmonary hypertension (PH)?

Question Title

* 2. What is your gender?

Question Title

* 3. What is your age range?

Question Title

* 4. In what region of the United States do you live?

Question Title

* 5. What level of education have you completed?

Question Title

* 6. What is your marital status?

Question Title

* 7. What best describes your employment status?

Question Title

* 8. How do you receive health insurance?

Question Title

* 9. At what age were you (or your loved one) diagnosed with PH?

Question Title

* 10. How long did it take for you (or your loved one) to receive an accurate diagnosis of PH?

Question Title

* 11. How long have you known that you have PH? or How long has your loved one known that they have PH?

Question Title

* 12. How do you generally acquire information about PH?

Question Title

* 13. Where do you receive most of your information about the Pulmonary Hypertension Association (PHA)?

Question Title

* 14. How often do you read Pathlight?

Question Title

* 15. How much of Pathlight do you typically read?

Question Title

* 16. How much total time do you typically spend on each issue?

Question Title

* 17. What is your favorite section of Pathlight? (check all that apply)

Question Title

* 18. How do you prefer to read Pathlight?

Question Title

* 19. If there were additional content from Pathlight available only online, how likely are you to go the PHA website and read it?

Question Title

* 20. Please rate your interest in the following topics most frequently in the Making Connections section of Pathlight:

Question Title

* 21. Please rate your interest in the following topics on health and medical advancements most frequently found in the Health Matters section of Pathlight:

Question Title

* 22. Please rate your interest in the following topics on advocacy and awareness most frequently found in the Advancing the Cause section of Pathlight:

Question Title

* 23. Please rate your interest in learning more about fundraising:

Question Title

* 24. Please rate your interest in learning more about events:

Question Title

* 25. Please rate the quality of Pathlight on the following:

Question Title

* 26. Please identify the ways in which Pathlight strengthens your connection to PHA and the PH community. (check all that apply)

Question Title

* 27. Please indicate your agreement with the following statement: "Pathlight strengthens my personal connection to PHA and the PH community."

Question Title

* 28. Please identify the ways in which Pathlight does not enhance your connection to PHA and the PH community. (check all that apply)

Question Title

* 29. What actions have you taken because of reading Pathlight? (check all that apply)

Question Title

* 30. To what degree do you consider Pathlight to be a credible source of information about PH?

Question Title

* 31. What article topic would you consider to be the most memorable in the last year?

Question Title

* 32. What is it that you like most about Pathlight?

Question Title

* 33. What is it that you like least about Pathlight?

Question Title

* 34. Are there any changes or improvements you would like to suggest?

Question Title

* 35. Please suggest any new topics that you wish Pathlight would cover: