• Deutsch
  • English
  • Español
  • Français
  • Italiano
  • Magyar
  • Nederlands
  • Polski
  • Română
  • Čeština
GENERAL INFORMATION on YOU

Question Title

* 1. In what country do you work?

Question Title

* 2. What is your profession?

Question Title

* 3. How many years of working experience in nursing do you have?

Your WORK SETTING and WORKLOAD

Question Title

* 4. Please indicate your main work setting

Question Title

* 5. Please indicate your working scheme (in general, as a nurse, both for PwMS and other conditions)

Question Title

* 6. Please indicate how much of your working time (listed in the previous question), you dedicate to PwMS and all tasks related to caring for PwMS.

Question Title

* 7. Please indicate your caseload of individual PwMS you see  (not your team) on average per year (one patient  = 1 caseload, even when seen only short or multiple times during a year).
Important: If you work in a team, please devide the number of PwMS you see per year by the number of full time equivalent (FTE) nurses in your team. 
For example: Your service has 9.8 FTE nurses and sees 5,000 PwMS a year on average => Caseload is 5000/9.8 = 510 => 501-700.

Question Title

* 8. How many times, on average, do you see your PwMS per year (in-person or via teleconsultation)?

Question Title

* 9. How much time do you spend with your PwMS on average during their consultation, including any related follow-up tasks (e.g., referrals, paperwork, liaising with colleagues)?

Question Title

* 10. Is the PwMS also seen by another member of the multidisciplinary team (e.g., neurologist, social worker) either before, during or after your own consultation?

Question Title

* 11. Do you have access to administrative support (supporting you in medication administrative tasks, sending referral emails, sending requests to support services, ...)? If yes, how much approximately?
Important: If you share your administrative support with colleagues, please divide the admin support by the number of colleagues. Example: if you are 10 nurses and have 1 admin support => You have access =< 1/10 full time equivalent (one day in 10 working days)

Question Title

* 12. How much of your time is spent supporting (educating, ...) those people indirectly affected by MS (i.e., family and friends of the PwMS)?

YOUR SPECIFIC TASKS and WORK LEFT UN-DONE (not executed)

Question Title

* 13. Please estimate to the best of your abilities, over a period of 1 month, the percentage of your time assigned to the following activities related to your work with PwMS (! please reply to each row, and try to approach 100% as closely as possible).

  0% <5% 5-15% 16%-25% > 25%
Educating the PwMS, and family/general counselling
Psychological interventions/support
Referrals to other HCPs
Social interventions/benefits advice (Employment, legal and insurance issues)
Symptom management
Diagnostic procedures (e.g. blood drawing, clinical or technical test procedures)
Treatment selection/monitoring, management of side effects
Completing necessary paperwork (electronic patient files, etc)
Clinical trials/research
Team consulting
Other tasks

Question Title

* 14. Indicate what work you leave ‘un-done’ during the MS care-pathway ('un-done': not able to complete due to lack of time or other reasons).

  1 (= No type of this work is left un-done) 2 3 4 5 6 7 8 9 10 (= A lot of this type of work is left un-done)
Educating the PwMS, and family/general counselling
Psychological interventions/support
Referrals to other health care practitioners
Social interventions/benefits advice (Employment, legal and insurance issues)
Symptom management
Diagnostic procedures (e.g. blood drawing, clinical or technical test procedures)
Monitoring/recommend medication and side effects
Completing necessary paperwork (electronic patient files, etc)
Clinical trials
Team consulting
Solutions that could be implemented to decrease the work left 'un-done' (un-done = not executed)

Question Title

* 15. Indicate the priority of potential solutions to decrease the work left ‘un-done’   (please indicate the priority for each row)

  1= not a priority 2 3 4 5 6 7 8 9 10 = highest priority
(Increased) access to administrative support
(Increased) access to a social worker
(Increased) access to psychological support for the PwMS
(Increased) access to a physiotherapist
(Increased) access to an occupational therapist
(Increased) access to refer PwMS to an emergency care pathway for those patients presenting with MS-related morbidity.
Ability for nurse to independently prescribe certain medications (avoiding to wait for/push a clinician)
Ability for nurse to independently request specific investigations (avoiding to wait for/push a clinician)
Increased number of nurse colleagues
Reduced number of different support schemes to administer (e.g. support schemes offered by pharma companies or public authorities)
Improved access to effective databases and software to support patient care and interventions (e.g. patient electronic medical record (EMD) and more advanced IT systems linking the EMD to other systems)
Being able to refer to multi-disciplinary team that is available to see the PwMS in a timely manner
Additional comments

Question Title

* 16. Thank you for having completed this survey.
Please list here any other comments/suggestions you might have in relation to the topic of workload/caseload management.

Question Title

* 17. Please provide your email address if you would like to

T