Supporting Biobanking in NSW

Help us define the biobanking landscape across the state

You're invited to take part in a short survey being conducted by NSW Health Pathology.

This survey aims to:

identify and update baseline information about biobanks across NSW and the services that are offered
help to identify gaps in the current landscape, and
improve and standardise engagement with NSW Health Pathology and other diagnostic services.

Once completed, the results of the survey will be compiled into a report and shared with all participants.

This will enable the discovery of areas of need and offers the potential for more collaborative and symbiotic relationships between NSW biobanks.

Thank you for your time and valuable contribution.

Jane Carpenter
Biobanking Project Manager, NSW Health Pathology

Question Title

* 1. Biobank name

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* 2. Biobank location

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* 3. Affiliation (if any) - i.e University/Local Health District/Medical Research Institute etc

Yes

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* 4. Currently collecting samples and/or data

Yes

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* 5. Currently distributing samples and/or data

Yes

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* 6. What is the focus area of your biobank? (select all that apply)

Oncology

Haematology

Immunology

Cardiovascular Disease

Diabetes/Renal Health

Paediatrics/Neonatology

Microbiology

Virology

Fungal Diseases

Dentistry/Oral Health

Neurosciences

Ophthalmology and Optometry

Reproductive Medicine

Population Health

Public Health

Other (please specify)

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* 7. Biobank focus area.
Please provide further breakdown if applicable, e.g. for Oncology add in type of cancer(s) collected; for Neuroscience add any specific disease focus such as Alzheimer’s etc.

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* 8. Collection strategy

All comers with specified diseases

Collected to supply specific requests only

Other (please specify)

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* 9. Sample and data source

Public pathology labs

Private pathology

Both

Other (please specify)

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* 10. Services offered

Processing and storage

DNA extraction

Slide imaging

Other (please specify)

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* 11. Access conditions

Open access - Australia only

Open access - both Australia and Internationally

Restricted (e.g. samples to direct group operating biobank only; to other researchers in same institution)

Semi-open (e.g. by collaboration with Biobank PIs;)

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* 12. Database used

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* 13. Do you have, or are you interested in a formal quality management system?

ISO 9001 - have

ISO 9001 - interested in

ISO 20387 - interested in (when it becomes available)

Other

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* 14. Are you currently part of a biobank network? If yes, please provide additional details, then go to Q 16. If you are not part of a biobank network, please go to Q 15.

Yes

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* 15. Is this something you would be interested in? If yes, what other biobanks, services or organisations do you think it would be most useful to network with.

Yes

Supporting Biobanking in NSW

Help us define the biobanking landscape across the state

Question Title

* 1. Biobank name

Question Title

* 2. Biobank location

Question Title

* 3. Affiliation (if any) - i.e University/Local Health District/Medical Research Institute etc

Question Title

* 4. Currently collecting samples and/or data

Question Title

* 5. Currently distributing samples and/or data

Question Title

* 6. What is the focus area of your biobank? (select all that apply)

Question Title

* 7. Biobank focus area. Please provide further breakdown if applicable, e.g. for Oncology add in type of cancer(s) collected; for Neuroscience add any specific disease focus such as Alzheimer’s etc.

Question Title

* 8. Collection strategy

Question Title

* 9. Sample and data source

Question Title

* 10. Services offered

Question Title

* 11. Access conditions

Question Title

* 12. Database used

Question Title

* 13. Do you have, or are you interested in a formal quality management system?

Question Title

* 14. Are you currently part of a biobank network? If yes, please provide additional details, then go to Q 16. If you are not part of a biobank network, please go to Q 15.

Question Title

* 15. Is this something you would be interested in? If yes, what other biobanks, services or organisations do you think it would be most useful to network with.

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* 16. Is there any other information you would like to share?

* 7. Biobank focus area.
Please provide further breakdown if applicable, e.g. for Oncology add in type of cancer(s) collected; for Neuroscience add any specific disease focus such as Alzheimer’s etc.