9th Focus on Neuroendocrine Tumors Needs Assessment Survey

Question Title

* 1. Tell us a little about yourself. I am: (you may pick more than one)

In Active Treatment

Survivor

Family Member/Caregiver

Health Care Provider

Number of years since diagnosis

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* 2. Genetics and Risk

	Very Interested	Somewhat Interested	Not Interested
Familial risk	Familial risk Very Interested	Familial risk Somewhat Interested	Familial risk Not Interested
Testing	Testing Very Interested	Testing Somewhat Interested	Testing Not Interested

List other topics of interest

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* 3. Diagnosis

	Very Interested	Somewhat Interested	Not Interested
Understanding test results	Understanding test results Very Interested	Understanding test results Somewhat Interested	Understanding test results Not Interested
Making treatment choices	Making treatment choices Very Interested	Making treatment choices Somewhat Interested	Making treatment choices Not Interested

List other topics of interest

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* 4. Cancer Treatment Advances

	Very Interested	Somewhat Interested	Not Interested
Surgery	Surgery Very Interested	Surgery Somewhat Interested	Surgery Not Interested
Radiation/Proton therapy	Radiation/Proton therapy Very Interested	Radiation/Proton therapy Somewhat Interested	Radiation/Proton therapy Not Interested
Chemotherapy	Chemotherapy Very Interested	Chemotherapy Somewhat Interested	Chemotherapy Not Interested
Clinical Trials	Clinical Trials Very Interested	Clinical Trials Somewhat Interested	Clinical Trials Not Interested
Immunotherapy	Immunotherapy Very Interested	Immunotherapy Somewhat Interested	Immunotherapy Not Interested
Targeted/Biological Therapies	Targeted/Biological Therapies Very Interested	Targeted/Biological Therapies Somewhat Interested	Targeted/Biological Therapies Not Interested
Reconstruction	Reconstruction Very Interested	Reconstruction Somewhat Interested	Reconstruction Not Interested
Rehabilitation	Rehabilitation Very Interested	Rehabilitation Somewhat Interested	Rehabilitation Not Interested
New scientific developments/basic science findings	New scientific developments/basic science findings Very Interested	New scientific developments/basic science findings Somewhat Interested	New scientific developments/basic science findings Not Interested
Supportive Care	Supportive Care Very Interested	Supportive Care Somewhat Interested	Supportive Care Not Interested

List other topics of interest

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* 5. Complementary and Alternative Therapies

	Very Interested	Somewhat Interested	Not Interested
Tai Chi	Tai Chi Very Interested	Tai Chi Somewhat Interested	Tai Chi Not Interested
Yoga	Yoga Very Interested	Yoga Somewhat Interested	Yoga Not Interested
Exercise	Exercise Very Interested	Exercise Somewhat Interested	Exercise Not Interested
Acupuncture	Acupuncture Very Interested	Acupuncture Somewhat Interested	Acupuncture Not Interested
Imaging	Imaging Very Interested	Imaging Somewhat Interested	Imaging Not Interested
Reflexology	Reflexology Very Interested	Reflexology Somewhat Interested	Reflexology Not Interested
Meditation	Meditation Very Interested	Meditation Somewhat Interested	Meditation Not Interested
Massage	Massage Very Interested	Massage Somewhat Interested	Massage Not Interested
Reiki Therapy	Reiki Therapy Very Interested	Reiki Therapy Somewhat Interested	Reiki Therapy Not Interested
Herbal Supplements	Herbal Supplements Very Interested	Herbal Supplements Somewhat Interested	Herbal Supplements Not Interested

List other topics of interest

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* 6. Side Effects of Treatment and Symptom Management

	Very Interested	Somewhat Interested	Not Interested
Nutrition	Nutrition Very Interested	Nutrition Somewhat Interested	Nutrition Not Interested
Weight Gain/Loss	Weight Gain/Loss Very Interested	Weight Gain/Loss Somewhat Interested	Weight Gain/Loss Not Interested
Nausea and Vomiting	Nausea and Vomiting Very Interested	Nausea and Vomiting Somewhat Interested	Nausea and Vomiting Not Interested
Fatigue/Maintaining energy level	Fatigue/Maintaining energy level Very Interested	Fatigue/Maintaining energy level Somewhat Interested	Fatigue/Maintaining energy level Not Interested
Pain	Pain Very Interested	Pain Somewhat Interested	Pain Not Interested
Joint Pain	Joint Pain Very Interested	Joint Pain Somewhat Interested	Joint Pain Not Interested
Sexual side effects	Sexual side effects Very Interested	Sexual side effects Somewhat Interested	Sexual side effects Not Interested
Memory or Cognition Issues	Memory or Cognition Issues Very Interested	Memory or Cognition Issues Somewhat Interested	Memory or Cognition Issues Not Interested

List other topics of interest

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* 7. Emotional Well Being and Support

	Very Interested	Somewhat Interested	Not Interested
Intimacy and sexuality	Intimacy and sexuality Very Interested	Intimacy and sexuality Somewhat Interested	Intimacy and sexuality Not Interested
Communication with family and friends	Communication with family and friends Very Interested	Communication with family and friends Somewhat Interested	Communication with family and friends Not Interested
Dating and relationships	Dating and relationships Very Interested	Dating and relationships Somewhat Interested	Dating and relationships Not Interested
Work and career	Work and career Very Interested	Work and career Somewhat Interested	Work and career Not Interested
Coping with feelings	Coping with feelings Very Interested	Coping with feelings Somewhat Interested	Coping with feelings Not Interested
Managing depression and/or anxiety	Managing depression and/or anxiety Very Interested	Managing depression and/or anxiety Somewhat Interested	Managing depression and/or anxiety Not Interested
Talking with your healthcare team	Talking with your healthcare team Very Interested	Talking with your healthcare team Somewhat Interested	Talking with your healthcare team Not Interested
Learning from experiences of other NETs survivors	Learning from experiences of other NETs survivors Very Interested	Learning from experiences of other NETs survivors Somewhat Interested	Learning from experiences of other NETs survivors Not Interested
Caregiver	Caregiver Very Interested	Caregiver Somewhat Interested	Caregiver Not Interested
Spirituality	Spirituality Very Interested	Spirituality Somewhat Interested	Spirituality Not Interested
Psychological Counseling	Psychological Counseling Very Interested	Psychological Counseling Somewhat Interested	Psychological Counseling Not Interested
Medical insurance	Medical insurance Very Interested	Medical insurance Somewhat Interested	Medical insurance Not Interested
Financial issues	Financial issues Very Interested	Financial issues Somewhat Interested	Financial issues Not Interested
Community support	Community support Very Interested	Community support Somewhat Interested	Community support Not Interested

List other topics of interest

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* 8. Cancer Recurrence

	Very Interested	Somewhat Interested	Not Interested
Monitoring for recurrence	Monitoring for recurrence Very Interested	Monitoring for recurrence Somewhat Interested	Monitoring for recurrence Not Interested
Prevention	Prevention Very Interested	Prevention Somewhat Interested	Prevention Not Interested

List other topics of interest

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* 9. Special Interests Groups

	Very Interested	Somewhat Interested	Not Interested
African‐American	African‐American Very Interested	African‐American Somewhat Interested	African‐American Not Interested
Latino	Latino Very Interested	Latino Somewhat Interested	Latino Not Interested
Asian	Asian Very Interested	Asian Somewhat Interested	Asian Not Interested
Younger men and women	Younger men and women Very Interested	Younger men and women Somewhat Interested	Younger men and women Not Interested
LGBTQ	LGBTQ Very Interested	LGBTQ Somewhat Interested	LGBTQ Not Interested
Advocacy	Advocacy Very Interested	Advocacy Somewhat Interested	Advocacy Not Interested
Helping other survivors	Helping other survivors Very Interested	Helping other survivors Somewhat Interested	Helping other survivors Not Interested
Mid‐Life	Mid‐Life Very Interested	Mid‐Life Somewhat Interested	Mid‐Life Not Interested
Older adult	Older adult Very Interested	Older adult Somewhat Interested	Older adult Not Interested

List other topics of interest

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* 10. When do you prefer events (you may pick more than one)

All Day Conference

Half Day Conference

Saturday

Fall

Winter

Spring

Summer

No Preference