Introduction

The NHS in Leeds is working to improve dementia diagnosis and support for people with dementia and families after diagnosis. At the moment we know that, whilst some people feel well-supported, others have been left alone to manage with the diagnosis. The waiting times for services have also been very variable depending on which part of Leeds you live in.

We have specialist NHS services in Leeds, provided by doctors specialising in dementia and the Leeds memory service. We know that people living with dementia appreciate and value these services. However, older people with dementia need all the different NHS services to work more closely together, as many are living with other health conditions and illnesses.

Therefore, our new plan proposes that dementia diagnosis and support after diagnosis will be centred on GP practices; with the doctors specialising in dementia and the memory service coming in to run local clinics. At the moment many people travel to the specialist memory clinics for appointments.

Our ambition is to identify, diagnose and support more people to live well with dementia. Therefore the plan is that new staff will be added to local teams. These staff roles are “support workers”, with the job to support people through diagnosis and ensure people have information and support afterwards. This role has worked well elsewhere in England, and there is evidence that it has helped to reduce hospital admissions. So investing in the new staff could both improve the quality of people’s lives and, overall, pay for itself.

We are consulting further to hear the views and concerns of people living with dementia. We want to better understand any potential effect that the proposed changes might have. We will then adjust the plans accordingly.

What will happen to my views?
We will use your feedback alongside feedback from GPs, the specialist mental health services, and others to develop the proposed plan into its final version.

Your views will remain anonymous, which means no-one will see your name in connection with this questionnaire. If you would like help to complete this questionnaire or would like it in another language or format please contact us by phone: 0113 8432900 or email: leedsnorthccg@nhs.net

Thank you for taking the time to complete this form. We would like to have all your views by 3 May 2014.

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