In 2015, while developing the European Inhibitor Network programme, the European Haemophilia Consortium (EHC) carried out a survey aimed at people with inhibitors and their caregivers that aimed at understanding the needs and challenges this patient cohort and their caregivers have, as well as to find the best ways to address them.
Since 2015, there have been new developments in treatment of haemophilia, having a significant impact on people who live with haemophlia and inhibitors.
With this survey we would like to reach out once again to individuals with haemophilia who have inhibitors and their caregivers to ask, if and how their challenges and needs have changed, and how we can better tailor our support through the European Rare and Inhibitor Network in this new treatment landscape. Please help us by answering this short survey. Thank you!