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The Power of a Zebra Roar
1.
Do you have (or know someone) with a diagnosis of hypermobile EDS or a comorbidity?
Yes
No
Other (please specify)
2.
Are you interested in joining an online Zebra community with access to articles, documents, resources, and products recommended for hEDS?
Extremely interested
Very interested
Somewhat interested
Not so interested
Not at all interested
3.
What form would be most effective for you?
An app
An e-newsletter
A member forum website
Videos
Expert webinars
A regularly updated print book
A growing set of ebooks
A Discord server
A Slack community
A Facebook group
Other (please specify)
None of the above
4.
If so, are you willing to invest in development of the benefit?
Very likely
Likely
Neither likely nor unlikely
Unlikely
Very unlikely
5.
If so, what amount per month is it worth to you?
$3 per mo
$5 per mo
$10 per mo
$15 per mo
$100 per yr
None of the above
Other (please specify)
6.
Ideas on organizations who can support fundraising efforts?
EDS Clinics
Medical providers or doctors
Non profits or foundations
Pharma companies
Products used by our population who might sponsor
Universities
Other (please specify any ideas)
7.
Other suggestions on raising awareness, sharing resources within the zebra community?