The purpose of this research is to understand what Australian parents of children with Autism think about the gut-autism link and whether their child is using any gut treatments. This will hopefully allow health professionals to understand parent perspectives better and to be more aware of complementary and alternative medicine use in this patient group.  This is an important issue for directing research and comparing the quality of available evidence with what is being used.

Some of the questions will be about you and your personal information, this helps us to find links in the data and who this data applies to best. For more information please look at the participant information sheet.

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* 1. What is your age?

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* 2. What is your relationship to your child?

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* 3. How old is your child with Autism? (years)

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* 4. What is your postcode?

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* 5. What is your approximate average household income?

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* 6. What is the highest level of school you have completed or the highest degree you have received?

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* 7. Please describe the ethnicity you identify as

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* 8. In what language do you speak most fluently?

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* 9. Have you previously heard of any connection between the brain and gut?

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* 10. If you think the gut and Autism are connected, please explain how you think they are connected. 

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* 11. Where did you hear about any connection between the brain and gut? 

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* 12. Has your child had any of the following investigations for gut problems?

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* 13. Has your child ever suffered from the following:

  In the past Currently Never
Diarrhoea
Constipation
Nausea/vomiting
Reflux
Food selectivity

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* 14. Does your child regularly suffer from any of the following? (tick all that apply)

  Never Infrequently Sometimes Often  Very often 
Diarrhoea
Constipation 
Nausea/vomiting
Reflux
Food selectivity 

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* 15. Has your child been diagnosed with a gut problem? Please list and specify how this was diagnosed e.g. by GP, with a blood test etc

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* 16. Please rate each of the following statements

  Strongly do not believe Do not believe Believe Strongly believe No opinion
Gut problems can cause autism
Autism can cause gut problems
Gut problems make autism symptoms worse 
Gut problems and autism are not linked

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* 17. Has your child ever been on any special diets? Tick all that apply

  In the past Currently Never 
Gluten free
Dairy free 
Yeast free
Special carbohydrate diet
High protein diet
Low protein diet
Sugar free
Salicylate free

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* 18. Do you think certain diets affect your child's behaviour?

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* 19. Please specify the reason for any special diet. NA if never used a special diet

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* 20. Please specify the reason for stopping any diets used in the past (NA if nil special diets ever)

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* 21. Has your child ever used any of the following supplements/vitamins? (tick all that apply)

  In the past Currently  Never
Multivitamin
Vitamin C
Vitamin A
Multi-B
Vitamin B6 (pyridoxine)
Vitamin B12
Essential fatty acids/omegas
L-glutamine
L-glutathione 
Tryptophan 
Dimethylglycine
Magnesium 
Calcium 
Vitamin D

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* 22. Please specify the reason for using any vitamins/supplements (NA if never used)

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* 23. Please specify the reason for stopping any vitamins/supplements in the past (NA if never used)

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* 24. Has your child ever used any of the following treatments for their gut or autism (tick all that apply)

  In the past Currently  Never
Probiotics
Antibiotics
Antifungals
Antivirals
Immunoglobulins 
Digestive enzymes
Secretin 
Antihistamines
Heartburn/reflux medications 

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* 25. Please specify the reason for using the above treatment/s (NA if never used)

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* 26. Please specify the reason for using the above treatment/s (NA if never used)

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* 27. Please list any other gut treatments your child has used and the main reasons for using them

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* 28. Please tick all that apply for the following statements

  Previously  Currently  Never
My child uses gut treatments for gut symptoms
My child uses gut treatments for behaviour problems associated with autism 
My child uses gut treatments to cure their autism 

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* 29. Does your child see any of the following people for their autism?

  Previously Currently  Never
General practitioner
Psychiatrist 
Naturopath
Homeopath
Chiropractor
Psychologist
Paediatrician 

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* 30. Please rank the following from most influential to least influential regarding autism symptoms

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* 31. Please comment on why you ranked the top ranked (most influential) and bottom ranked (least influential) people above

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* 32. Where do you look for information on treatments/therapies? (e.g. websites - please list which, organisations, friends etc)

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* 33. Do you discuss treatments like diet or supplements with your child's doctor?

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* 34. What are your main reasons for discussing or not discussing these treatments?

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