The information you provide will assist the Lymphedema Advocacy Group in making future improvements to insurance coverage for lymphedema treatment supplies and services. Please report any instances of denials or insufficient coverage, especially those related to compression garments, bandaging supplies, and pneumatic compression pumps. Responses will be kept confidential.

PLEASE NOTE: Documentation such as denial letters, an Explanation of Benefits statement (EOB), or any written confirmation about your policy’s lack of coverage or reason for denying the coverage is extremely helpful for us to see. At the end of this form, you will have the option to upload a copy or photo of these documents. You cannot save your progress, so please have any such items on hand before you begin, and if desired, black out or cover any personal identifying information.

To learn more about our group or to contact us, please visit our website.

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1. Information Disclosure Agreement
The information you provide will assist the Lymphedema Advocacy Group in making future improvements to insurance coverage for lymphedema treatment supplies and services.

Our group works to enact policy changes that improve coverage for all patients. We do not assist with individual patient appeals and will not share your personal information.
(Required.)

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2. Your Name (Required.)

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4. Who are you completing this form for? (Required.)

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5. What is the cause of the patient's lymphedema?
We are asking because some states have congenital anomaly laws (primary lymphedema is a congenital anomaly) and because the Women's Health and Cancer Rights Act provides certain guarantees of coverage to women with breast cancer-related lymphedema.
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