Thank you for participating in this survey. You are part of the LIVE testing data collection group. We have previously collected data as a ‘baseline’ from families like you before any change improvements were put in place.
We have now made a recommendation for improvement, and your information is helping to monitor if this is making the changes needed. We will continue recommending changes and monitoring until a satisfactory level of experience is consistently reported.
You can complete this survey each time the child or young person has an X-ray, during the time we are collecting data (until 31st July 2027) for as many X-rays as they need in relation to their cancer care. Please respond based on the most recent experience each time. This will help us to monitor progress over time.
Eligibility:
- Child, teenager or young adult between age of 0 to 25th birthday, who has a learning difficulty and / or autism; (this does not need to be confirmed if you are awaiting the diagnosis) and
- is diagnosed with a cancer (including leukaemia and blood cancers and relapses) or treated for cancer in the last 3 years.
- Has had an X-ray in any location in order to confirm diagnosis, monitor for signs of cancer or response to treatment, look for side effects of treatment (such as infection) or to assist treatment (such as checking position of an NG Tube or Hickman line).
Exclusion:
- X-ray performed under sedation or anaesthesia.
- X-ray for a different reason than the cancer diagnosis, such as an accident.
- Mobile X-ray performed on the ward.
