Cassie & Friends Society Youth Programs Community Survey

The Cassie & Friends Society is an organization dedicated to transforming the lives of children, youth, and families who are facing rheumatic diseases (JIA, Systemic Lupus Erythematosus, dermatomyositis, vasculitis, and others). We are seeking community input to shape our new programs focused on youth and young adults. Your responses will help to inform the focus of new offerings, including workshop and event topics. Thank you in advance for your time!

Question Title

* 1. Which best describes you?

I am a teenager (13-17 years old) living with a rheumatic disease.

I am a young adult (18-25 years) old living with a rheumatic disease.

I am the parent or guardian of a teen or young adult living with a rheumatic disease.

Other (please specify)

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* 2. Mental, Social and Emotional Wellbeing

Which mental and emotional health topics feel most relevant to you or your teen? Select up to 3 boxes which are most important to you.

Relating to friends or family who don't understand the impact of my condition

Feeling socially isolated due the impact of my rheumatic disease

Building healthy habits and routines (ex. sleep, exercise, nutrition)

Understanding how my rheumatic disease impacts my mental health

Finding resources to better manage my stress, anxiety, and mental wellbeing

Meeting other youth living with similar rheumatic diseases

Balancing my needs with what others expect of me

Other (please specify)

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* 3. Managing my health amongst changes and transitions

Making the leap from pediatric to adult care, which topics feel most relevant to you or your teen? Check up to 3 boxes that are most important to you.

Tools to keep track of my symptoms (i.e. apps and platforms)

Managing my medications and how medications are paid for: Pharmacare, Special Authority and Insurance 101

Being my own advocate and learning how to attend doctors appointments independently

Administering my own medications

How to coordinate my adult rheumatology care team

Coping with emotions around the transition (i.e. confusion, anxiety, fear)

Other (please specify)

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* 4. Managing my health at school

Which topics about managing health challenges at school feel most relevant to you or your teen? Check up to three boxes which are most important to you.

Talking to my teachers or professors about my health condition (disclosing my health condition)

Knowing what additional accommodations I might need and how to ask for them

Managing my health condition in social situations

The benefits of registering with accessibility services at my college, university, or high school equivalent

Other (please specify)

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* 5. Managing my health in the workplace

Which topics about managing health challenges in the workplace feel most relevant to you or your teen? Check up to three boxes which are most important to you.

How to apply for a job (preparing a resume, cover letter, learning interview skills, and more)

How to tell my employer about my health condition (disclosing my health condition)

Understanding my rights as a worker and how to advocate for myself

Requesting workplace accommodations (modifications to your working environment)

How to find a mentor in the industry I’m interested in

How to find a job that is well-suited to my needs

Other (please specify)

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* 6. Availability and Attendance

Which dates and times work best for you to attend youth workshops or events?

Weekday evenings

Weekends (full day)

Weekends (half day)

Remote participation (live stream or webinar)

Other (please specify)

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* 7. In addition to educational programs, Cassie & Friends is planning events for youth with rheumatic conditions to connect. Which activities would interest you or your teen?

Physical activities (hiking, bowling, yoga, rock climbing, skating)

Social outings (movie night, coffee chats, games night, escape room)

Expressive arts (paint night, pottery, crafts, and journaling)

Wellness (mindfulness and meditation, cooking classes, personal development activities)

Other (please specify)

Thank you for your response! Stay up to date on Cassie & Friends youth events by visiting cassieandfriends.ca.

Question Title

* 1. Which best describes you?

Question Title

* 2. Mental, Social and Emotional WellbeingWhich mental and emotional health topics feel most relevant to you or your teen? Select up to 3 boxes which are most important to you.

Question Title

* 3. Managing my health amongst changes and transitionsMaking the leap from pediatric to adult care, which topics feel most relevant to you or your teen? Check up to 3 boxes that are most important to you.

Question Title

* 4. Managing my health at schoolWhich topics about managing health challenges at school feel most relevant to you or your teen? Check up to three boxes which are most important to you.

Question Title

* 5. Managing my health in the workplaceWhich topics about managing health challenges in the workplace feel most relevant to you or your teen? Check up to three boxes which are most important to you.

Question Title

* 6. Availability and AttendanceWhich dates and times work best for you to attend youth workshops or events?

Question Title

* 7. In addition to educational programs, Cassie & Friends is planning events for youth with rheumatic conditions to connect. Which activities would interest you or your teen?

* 2. Mental, Social and Emotional Wellbeing

Which mental and emotional health topics feel most relevant to you or your teen? Select up to 3 boxes which are most important to you.

* 3. Managing my health amongst changes and transitions

Making the leap from pediatric to adult care, which topics feel most relevant to you or your teen? Check up to 3 boxes that are most important to you.

* 4. Managing my health at school

Which topics about managing health challenges at school feel most relevant to you or your teen? Check up to three boxes which are most important to you.

* 5. Managing my health in the workplace

Which topics about managing health challenges in the workplace feel most relevant to you or your teen? Check up to three boxes which are most important to you.

* 6. Availability and Attendance

Which dates and times work best for you to attend youth workshops or events?