We are a group of cancer patients (from ICPV and CLG) and we have been invited to write an article about follow-up for cancer patients for the journal Clinical Oncology. We have put together this short questionnaire to find out cancer patients’ opinions and experience of follow-up. We would be really grateful if you would fill in our questionnaire. If you have any questions or comments please email adrienne@icpv.org.uk. Many thanks, Maggie, Mairead, Kat, Carolyn, Hilary, Lesley and Adrienne

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* 1. What is your gender?

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* 2. What is your age?

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* 3. Which cancer have you been diagnosed with?

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* 4. When were you diagnosed with cancer? If appropriate please give information about any recurrence.

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* 5. It would be helpful for us to know roughly where in the UK you were treated?

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* 6. What treatment did you have after you were first diagnosed

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* 7. If you have had a recurrence, what treatment did you have?

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* 8. After your initial treatment (eg surgery, radiotherapy, chemotherapy), for how long were you followed up?

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* 9. What type of follow-up did you have? And, how often?

  3 monthly 6 monthly 12 monthly no set time
Surgeon in clinic
Oncologist in clinic
CNS (nurse) in clinic
Radiographer
CNS telephone
With GP

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* 10. Were you followed-up as part of a clinical trial? Do you think you had a different experience?

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* 11. Did your follow-up meet your needs? Did you have concerns that were not met by your follow-up?

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* 12. Would you have preferred a different form of follow-up? If so, what?

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* 13. During (or after) your follow-up, did you feel confident about deciding when and if you needed to see a healthcare professional between follow-up appointments or regular scans?

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* 14. Did you find it easy to get an appointment to see the appropriate healthcare professional between (or after) follow-up appointments or regular scans?

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* 15. During (or after) your follow-up, did you participate in any type of group (eg group meetings/ on-line chat groups/complementary therapies etc) ? If so, did you find it helpful?

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* 16. There is increasing evidence to suggest that regular routine follow-up is of little benefit to some cancer patients. Many are now being discharged back to GPs after their primary treatment (eg surgery, radiotherapy and chemotherapy), but with rapid access to appropriate healthcare professional if/when needed.. Have you had this experience? Do you think is it a good direction for follow-up to go?

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* 17. Due to advances in treatment and earlier diagnosis, many cancer patients are now surviving for many years after treatment. It may be that regular, routine follow-up may not be necessary, but there is the issue of collecting long-term data on treatment side-effects and quality of life. Do you believe it is important to collect this data? Would you be happy to provide this type of information eg on-line, by email, by post, by phone...

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* 18. Is there anything else you would like to say about follow-up? We would like to hear your thoughts.

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* 19. If you would like to see the final article (May 2014), please leave your email address and we will send it to you. If you would like your survey results to remain anonymous, then just email adrienne@icpv.org.uk and ask to be sent the article.

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