Boston Children's Hospital Comic Book Survey

Boston Children’s Hospital values input from our patients and the general community on their attitudes towards clinical research and how best to communicate about general research topics.

We have developed two comic books to help educate families and the public about research and provide information that may be helpful in deciding whether to participate in a research study. We welcome your feedback about the comic books and any ideas for additional educational materials. Please consider taking this 5-minute survey after reading the comic book.

Question Title

* 1. Please check the category that best describes you

Patient

Family member of a patient

Potential research participant

Investigator

Research Coordinator

Administrator

Health care professional (e.g. physician, nurse, nurse practitioner, physicians assistant, etc.)

Other (please specify)

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* 2. Check the category for the age of the person who will read the comic book.

7 - 12 years

13 - 18 years

18 - 25 years

25 - 40 years

40 - 60 years

Over 60 years

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* 3. Please check the category that best describes you. You may choose more than one.

I am considering participating in research.

I am considering having my child participate in research.

I or my child have participated in research in the past.

I am interested in reading the comic book.

Other (please specify)

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* 4. What comic book did you read?

Sophie's Science Project

Biobank: Questions and Answers

Both, Sophie's Science Project and the BioBank.

Question Title

* 5. Please rate the following items:

	Strongly Disagree	Disagree	Neutral	Agree	Strongly Agree
The comic book was easy to understand.	The comic book was easy to understand. Strongly Disagree	The comic book was easy to understand. Disagree	The comic book was easy to understand. Neutral	The comic book was easy to understand. Agree	The comic book was easy to understand. Strongly Agree
The comic book helped me or my child understand more about research.	The comic book helped me or my child understand more about research. Strongly Disagree	The comic book helped me or my child understand more about research. Disagree	The comic book helped me or my child understand more about research. Neutral	The comic book helped me or my child understand more about research. Agree	The comic book helped me or my child understand more about research. Strongly Agree
The comic book helped me think about questions to consider if I or my child was asked to participate in research.	The comic book helped me think about questions to consider if I or my child was asked to participate in research. Strongly Disagree	The comic book helped me think about questions to consider if I or my child was asked to participate in research. Disagree	The comic book helped me think about questions to consider if I or my child was asked to participate in research. Neutral	The comic book helped me think about questions to consider if I or my child was asked to participate in research. Agree	The comic book helped me think about questions to consider if I or my child was asked to participate in research. Strongly Agree
The comic book helped me understand that I have choices and that participation in research is voluntary.	The comic book helped me understand that I have choices and that participation in research is voluntary. Strongly Disagree	The comic book helped me understand that I have choices and that participation in research is voluntary. Disagree	The comic book helped me understand that I have choices and that participation in research is voluntary. Neutral	The comic book helped me understand that I have choices and that participation in research is voluntary. Agree	The comic book helped me understand that I have choices and that participation in research is voluntary. Strongly Agree
I feel better educated about clinical research.	I feel better educated about clinical research. Strongly Disagree	I feel better educated about clinical research. Disagree	I feel better educated about clinical research. Neutral	I feel better educated about clinical research. Agree	I feel better educated about clinical research. Strongly Agree

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* 6. Please provide any additional comments that you would like to share about the comic book.

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* 7. For what other research related topics would you recommend developing educational materials?

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* 8. What type of educational material would you like to see in the future? You may check more than one.

Handout with text, available on the web or on paper

Comic Book (pictorial educational monograph

Educational video to be posted on youtube

Other (please specify)

Boston Children's Hospital Comic Book Survey

Question Title

* 1. Please check the category that best describes you

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* 2. Check the category for the age of the person who will read the comic book.

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* 3. Please check the category that best describes you. You may choose more than one.

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* 4. What comic book did you read?

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* 5. Please rate the following items:

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* 6. Please provide any additional comments that you would like to share about the comic book.

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* 7. For what other research related topics would you recommend developing educational materials?

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* 8. What type of educational material would you like to see in the future? You may check more than one.

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* 9. Please provide any additional suggestions about ways to better education the public about clinical research