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Expression of Interest Form: Alopecia UK Webinar

Thank you for your interest in taking part in an Alopecia UK webinar. This short form helps us understand which topic you may be a good fit for, what perspective you could bring, and what support you might need if selected.

What kinds of experiences are we hoping to include?
We are not looking for one “perfect” story or one particular viewpoint. For each topic, we hope to include a mix of experiences so the discussion reflects the variety within the alopecia community.

  • Can Stress Cause Hair Loss? We would like to hear from people who noticed hair loss during or following a stressful period; people who believed stress may have been a factor (or not a factor but were told it was), whether or not this was confirmed; people who have experienced the emotional impact of hair loss; people who have found ways to manage stress or uncertainty.
  • JAK Inhibitors: Who Can Get Them and How? We would like to hear from people who are receiving JAK inhibitors through the NHS or privately; people who have seen hair regrwoth or those that have seen little to no growth; people who were not eligible; people who decided against treatment; people with different experiences of benefits, side effects, access or decision-making.
  • My Child Has Alopecia: How Do We Decide About Treatment? We would like to hear from parents and carers who chose treatment; parents and carers who decided not to; families whose child helped make the decision; young adults willing to reflect on decisions made when they were children.
  • Trichologist or Dermatologist: Who Should I See? We would like to hear from people with different diagnosis and support journeys, including those who saw a GP, trichologist, dermatologist or more than one professional, and those who experienced delays, uncertainty or helpful support.

We want our panels to reflect a broad range of experiences across the alopecia community, including importantly a wide range of hair loss types. We may not be able to include everyone who registers interest, but we may contact people about future opportunities if they are happy for us to keep their details.
About you
1.Full name(Required.)
2.Email address(Required.)
3.Phone Number
4.What type of alopecia do you have?(Required.)
5.To which gender do you most identify?
6.Pronouns
7.Age group
8.What is your Ethnicity?
9.What region are you based in?
10.Have you ever connected with Alopecia UK before? (e.g attended an event, been to a support group, spoken with us on the phone etc.)
Topics and Dates
11.Which webinar topic(s) would you be interested in contributing to?
(You may select more than one)(Required.)
12.The plan is for all our webinars to take place in the evening, start times may vary depending on availability but we are aiming to start between 7pm-8pm. All webinars will be around one hour long.
13.Please tell us what experience or perspective you could bring to the topic(s) selected.

The more detail you are able to share, the better. Please feel free to either write as a paragraph or bullet point notes.(Required.)
Taking part
14.How would you prefer to be identified during the webinar?
15.Social media handles you would be happy for Alopecia UK to share, if any
16.Is there anything you would prefer not to discuss, or anything that would help you feel comfortable taking part?
17.Do you have any accessibility requirements we should be aware of?
Consent and expectations
If selected, we will arrange a short briefing call, share discussion areas in advance and agree any boundaries before the webinar. The webinars will be live online, approximately one hour long, and recorded for possible use on Alopecia UK channels in the future.
18.Please read the statements below carefully.

By selecting Yes, I confirm that I understand and agree that:

  • This is an expression of interest and does not guarantee participation.
  • If I am selected to take part, the webinar will be recorded.
  • Alopecia UK may edit, reproduce and use the recording, including clips, still images and quotations from my contribution, for charitable, educational and promotional purposes across its website, social media, printed materials and other communications, now and in the future.
  • Recordings may be shared publicly. Once published, they may be viewed, shared or copied by others. While Alopecia UK will honour requests to remove content from its own platforms where reasonably possible, it cannot control or remove copies that have already been shared or published elsewhere.
  • I will not receive payment for taking part or for the use of the recording.
  • I may withdraw from the process at any time.

Do you understand and agree to the above?(Required.)
19.Would you be happy for us to keep your details for future lived experience opportunities?