Overview

Introduction and purpose of the study:
You are invited to participate in a research study to help explore attitudes and awareness about NAFLD in teenagers. The purpose of the study is to gain a better understanding of your knowledge of liver health and disease in teenagers. The results of this survey will be used to understand your perspectives and can provide valuable information about awareness of NAFLD in teenagers. This is a one-time survey, and you will not be re-contacted.
 
What will happen if I take part in this research study?
If you agree to participate, you will be asked to complete an anonymous survey online via the Survey Monkey platform. The questionnaire includes 21 questions and should take approximately 5-10 minutes to complete.
 
What risks or benefits can I expect from being in the study?
No possible risks or benefits are foreseen. Your responses will be completely confidential and no personal identifying information will be gathered from you. Although there is no foreseeable benefit to you, you are helping me gain an understanding of your awareness of NAFLD in teenagers, and you will be helping to build a base of knowledge.
 
Will my information be kept private?
There is no identifying code on the survey form and your identity will be kept completely private. Only group data will be reported, and responses will not be identifiable to an individual person. You may request a copy of the research results by contacting Arabella Isaacs at arabella@teenhealthawareness.org.
 
What other choices do I have if I do not take part in this study?
Taking part in this research study is voluntary. If you choose not to participate, there will be no penalty or loss of benefits to which you are otherwise entitled.
 
Who can answer my questions about the study?
If you have any questions regarding this research study, please contact Arabella Isaacs at arabella@teenhealthawareness.org.
 
Agreement to Participate
Completion of this survey indicates your agreement to participate in this study. Your participation is completely voluntary, and you can withdraw and exit the survey at any time.

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1. How important is your health to you?

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2. How important is your liver health to you? 

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3. Your liver health as a teenager affects how healthy you are as an adult. Do you agree with statement?

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4. Have you ever heard of Nonalcoholic Fatty Liver Disease (NAFLD)?

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5. Do you have liver disease?

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6. Do you have a family member with liver disease?

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7. How confident is your understanding of what the liver does?

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8. Please rate the following statements.

  Strongly disagree Disagree Neither agree nor disagree Agree Strongly agree
The liver removes waste from the blood
The liver produces vital proteins and hormones 
The liver helps regulate blood sugar 
The liver metabolizes macronutrients (protein, carbohydrate, fat)
The liver stores vitamins and minerals 
The liver helps with blood clotting

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9. Do you agree the following activities can protect your liver and keep it healthy?

  Strongly disagree Disagree Neither agree nor disagree Agree Strongly agree
Consistent exercise
Minimal consumption of alcohol 
No consumption of alcohol
Healthy and balanced diet
Getting vaccinated
Getting regular liver screening 
Taking vitamins and supplements
Good quality sleep 

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10. The health of the liver affects the health of the heart. Do you agree with this?

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11. What is the most common cause of chronic liver disease in teenagers?

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12. Please rate the following statements:

  Strongly disagree Disagree Neither agree nor disagree Agree Strongly agree
I am familiar with the disease NAFLD (Non-Alcoholic Fatty Liver Disease)
I understand what causes NAFLD
I understand how to prevent NAFLD
I understand how I can treat or reverse NAFLD

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13. Please rate your opinion on the following statements:

  Strongly disagree Disagree Neither agree nor disagree Agree Strongly agree
NAFLD is caused by excess fat in the liver
Being overweight is a risk factor for NAFLD 
Having diabetes or a family member with diabetes is a risk factor for NAFLD 
Having PCOS (Polycystic Ovary Syndrome) is a risk factor for NAFLD
Living a healthy lifestyle reduces the risk for NAFLD

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14. Teenagers can get NAFLD.

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15. The rate of NAFLD in teenagers has doubled in the last 10 years.

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16. One in six teenagers have NAFLD.

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17. NAFLD is the most common cause of chronic liver disease in teenagers.

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18. Having NAFLD as a teenager increases the risk for...

  Strongly disagree Disagree Neither agree nor disagree Agree Strongly agree
Having liver disease as an adult
Having type 2 diabetes as an adult
Having heart disease as an adult
Having liver cancer as an adult

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19. What is your gender?

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20. How old are you?

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21. What is your race/ethnicity?

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