XLH Caregivers Survey

Are you a caregiver to someone who has been diagnosed with X-Linked Hypophosphatemia (XLH)?
If so, you could earn $300 for participating in a unique market research interview on your loved one’s experience with the condition.

This market research is being coordinated by Magnolia Innovation. As experts in healthcare market research, we work with leaders in healthcare and patient associations to improve the care that patients receive. Panel members receive paid market research opportunities relevant to their condition. All information you give us is treated confidentially and per data protection regulations.

2.What is the age of the person you are caring for?

3.Are you currently receiving any payment for your caregiver services. Please select one

Yes, it’s my full-time job and I am compensated for my caregiver services

Yes, I receive some compensation for my caregiver services, but it is not my main source of income

No, I do not receive any payment for my caregiver services

5.Is the person you are caring for currently on therapy for XLH, using any of the following treatments? Please select all that apply

Active Vitamin D Supplements (e.g., Calcitriol)

Calcium Supplements (e.g., Citracal)

Phosphorus Supplements (e.g., K-Phos, Neutraphos-K)

CRYSVITA (burosumab)

Physical Therapy

Surgical or Orthopedic Treatment

Opioid Pain Medication (e.g., methadone, morphine, oxycodone, codeine)

NSAIDs / Over-the-Counter Pain Medications (e.g., aspirin, ibuprofen, Aleve®, Tylenol®)

Other

6.Thank you for completing the questionnaire. A member from our recruitment team will be contacting you in the next few days. Please provide your contact information:

Name:

Email:

Phone Number:

Preferred method of communication: