2020 Stakeholder Survey for Epilepsy Foundation of Delaware (EFDE)

Thank you for support of the Epilepsy Foundation of Delaware (EFDE) and for taking the time to fill out this survey. We will use the results from the survey to improve our services to the Delaware community going forward.

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* 1. What is your age?

Under 18

18-24

25-34

35-44

45-54

55-64

65+

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* 2. What is your gender?

Female

Male

Other (specify)

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* 3. How much total combined money did all members of your HOUSEHOLD earn last year?

$0 to $9,999

$10,000 to $24,999

$25,000 to $49,999

$50,000 to $74,999

$75,000 to $99,999

$100,000 to $124,999

$125,000 to $149,999

$150,000 to $174,999

$175,000 to $199,999

$200,000 and up

Prefer not to answer

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* 4. Which race/ethnicity best describes you? (Please choose only one.)

American Indian or Alaskan Native

Asian / Pacific Islander

Black or African American

Hispanic

White / Caucasian

Multiple ethnicity / Other (please specify)

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* 5. What county do you currently live in?

New Castle

Kent

Sussex

I live outside of Delaware.

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* 6. How would you describe yourself?

Person with epilepsy

Loved one/Friend/Caregiver of someone with epilepsy

Professional involved with epilepsy

Community member

Other (please specify)

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* 7. EFDE provides free trainings to many community groups throughout the state. Which, if any, of the following trainings do you think provide value? (check all that apply)

Law Enforcement Trainings-We train correctional officers and police academy cadets throughout the state on what seizures look like and what to do if someone has a seizure.

Early Childhood Educators-We train folks who work in day care facilities throughout the state to identify and respond to seizures.

School Personnel-We train educators and administrators thoughout the state on seizures and educational implications.

Teens-We train students on what to do when someone has a seizure and why it is important to treat someone with epilepsy the same as others.

Medical professionals-We train various medical professionals on current treatments and detailed seizure information.

School Nurses-We train nurses on common treatments for children and special implications for seizures in school.

Outreach and Awareness Events-We attend health fairs and other events throughout the state to spread information and awareness.

Other (please specify)

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* 8. EFDE provides support services to Delaware individuals with epilepsy and their loved ones. Which, if any, of these support services do you think have value? (check all that apply)

Individual Support-Folks can call the office for help with resources, answers to questions and a helpful listening ear.

Meet and Greet Support Groups-Held monthly in New Castle and Kent Counties, these groups provide information on topic pertaining to epilepsy and offer a safe environment to meet others with epilepsy.

Educational Conference-Held each year in November at Christiana Hospital, this is a comprehensive and informative conference highlighting local epilepsy experts and inviting the public free of charge.

Project UPLIFT-An 8-week over the phone skill building course for individuals with epilepsy to give them the skills to combat depression and anxiety.

Other (please specify)

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* 9. Of all the programs listed in questions 7 and 8, please select those that you have used or attended (check all that apply)

Individual Support

Meet and Greet Support Groups

Educational Conference

Project UPLIFT

Law Enforcement Trainings

Early Childhood Educators

School Personnel

Teens

Medical Professionals

School Nurses

Outreach and Awareness Events

Other (please specify)

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* 10. Would you attend a monthly meet and greet support group in Georgetown or another location in Sussex County?

Yes

N/A (I don't live in Sussex County or I don't attend Meet and Greets)

Other (please specify)

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* 11. In light of COVID-19, we conducted Meet and Greet Support Groups via the video meeting app Zoom. Would this be a format you would like to continue in the future? Check all that apply.

I would like to do Meet and Greets via Zoom.

I would like to keep Meet and Greets as an in person event.

I would attend either format.

N/A (I don't attend Meet and Greets)

Other (please specify)

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* 12. We would like your feedback about volunteering with EFDE. Which types of volunteer activity would you consider participating in? Check all that apply.

Event planning

Day of event volunteering

Speaking engagements

Buying/making/packing materials for events and programs

Committee or Board Membership

I prefer not to volunteer

Other (please specify)

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* 13. In regards to volunteering, how often would you like or be able to volunteer with EFDE?

Several times a month

Once a month

Several times a year

Once or twice a year

N/A (I prefer not to volunteer)

Other (please specify)

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* 14. EFDE is looking for corporate partners. Please write the name of any businesses that you think would like to partner with us for events, programs, volunteering etc. (and please leave your email so we can contact you!)

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* 15. Is there anything else that you'd like EFDE to do in the future?

Thank you for your feedback!