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SOMA Survey
1.
Which option best describes you?
I am a person with hemophilia
I am a caregiver or family member of a person with hemophilia
I am interested in hemophilia but am not a patient, caregiver, or family member
I am a health care professional checking in on what is circulating on social media
None of the above
2.
In what Hemophilia Treatment Center Region do you reside?
New England, Region 1 (ME, NH, VT, MA, RI, CT)
New England, Region 2 (NY, NJ, PR)
Mid-Atlantic (PA, DE, MD, WV, VA, DC)
Great Lakes (MI, IN, OH)
Southeast Region IV–-North (KY, TN, NC, SC)
Southeast Region IV–- South (GA, FL, AL, MS)
Northern States (IL, WI, MN, ND, SD)
Great Plains (NE, IA, KS, MO, OK, AR, TX, LA)
Mountain States (MT, ID, WY, UT, CO, AZ, NM, AK, WA, OR)
Western States (NV, CA, HI, GU)
I reside outside of the United States
Other (please specify)
3.
Prior to watching this content, were you aware that there are several new non-factor prophylaxis therapies available as options to treat hemophilia A and B?
Yes
No
Not applicable
4.
Prior to watching this content, were you aware that choosing a hemophilia treatment can be tailored to match your lifestyle, goals, and personal preferences instead of fitting your life around your treatment?
Yes
No
Not applicable
5.
When discussing how well your treatment plan is working for you, how well do you feel your health care team understands and addresses your needs and concerns?
Very well; they understand and respond to everything I mention
Somewhat well; they understand most of my concerns
Not well; they don’t seem to fully understand or address my concerns
I don’t feel comfortable talking to my provider about my needs and concerns
