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Survey: the global state of T1D
Why we're doing this survey: a case for change
Launched in partnership between ISPAD and JDRF, this ambitious survey seeks to better understand the health outcomes and access to care of people living with Type 1 Diabetes globally.
Far too many days, weeks and lives are still being lost to T1D. Our goal is to equip patients and medical professionals with fresh new evidence that helps them secure the resources they need. In the lead-up to the centenary of insulin’s discovery, these data will help the global community sound the call for change.
Results will be shared at the ISPAD Conference in October, and subsequently published and made available as part of the T1D Global Index as well as the centenary of insulin campaigns of a broad range of partner organizations.
There are also opportunities for you to get involved right now, e.g. providing commentary on initial results (e.g. for your country) and helping develop action plans for medical professionals. You can indicate your interest in the survey itself or by reaching out directly to Jami Goodman (jgoodman@jdrf.org).
The ISPAD Executive strongly encourages you to take 10-15 minutes of your day to complete this survey and help us play a part in equipping the global diabetes community with the strongest possible case for change.
Instructions for completion
We realize you won’t be able to supply perfect answers for all of our questions:
Please consider providing your best estimate and labelling it as "personal estimate" or "informed estimate". This will give us a base to supplement with other data sources such as expert interviews, published studies and private data
Alternatively, please answer whichever questions you can and skip the others
It is not an anonymous survey, but responses will be treated as confidential and results will only be shared at levels of aggregation that preserve the confidentiality of individual respondents.
Together we can hold a mirror up to the world, and hold decision-makers accountable for the billions of days lost to Type 1 Diabetes each year. The more answers we gather, the clearer and more compelling that mirror will be, and the stronger the calls for action we can make.
We hope you'll consider participating in this survey, as well as sharing it with your colleagues.
