Health Professionals NACDD Primary Care Survey

The National Association of Councils on Developmental Disabilities is asking practitioners to help us understand their experience providing primary care services to individuals with intellectual or developmental disabilities (I/DD) or similar functional disabilities. Your response will help us to better understand the challenges faced by practitioners serving patients with I/DD, and to look for opportunities to support practitioners and improve the experience of people with I/DD in accessing primary care services.

Please complete as much of this survey as you can, all information shared is confidential. You can reach out to covid@nacdd.org if you have any questions or comments.

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* 1. In which state or U.S. territory do you primarily practice as a Provider/Practitioner?

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* 2. What is your role as a health professional?

Physician/Clinician

Health Center Leader

Other (please specify)

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* 3. What percentage of your practice/your health center’s patient population are individuals with intellectual or development disabilities (I/DD) or similar functional disabilities?

None

Less than 5%

10-20%

20-40%

More than 50%

Unknown

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* 4. Do you believe that people with I/DD in your state/territory are getting primary care (including wellness visits, annual physical exams, or other primary care health care provider services)?

Yes

Other (please specify)

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* 5. Are you aware of any obstacles to accessing primary care for people with I/DD?

Yes

Please specify:

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* 6. What challenges does your practice/health center facing in providing primary care services to individuals with I/DD or similar functional disabilities?

Training

Resource or supports

Telehealth access

Language

Transportation

Complexity of health needs of individuals

Practice/Center Physical Accommodations

Payment structure

Other (please specify)

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* 7. Do you have any partnerships to help address the challenges identified in the above question?

Yes

Please list any partners:

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* 8. What services or supports has your office or practice instituted that have helped you better serve individuals with I/DD or similar functional disabilities?

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* 9. Do you have any feedback or suggestions for our organization as we look to identify challenges and opportunities in primary care for individuals with I/DD or similar functional disabilities?