How Important is Support for Rare Patients and Families?
How Necessary is Support When Dealing With a Rare Disease?
Support strategies are often implemented into care plans for patients and families affected by rare and complex disorders. Support can come in many ways, from a listening ear and offering understanding, to taking responsibility for care decisions, to being physically available to do chores and errands for the family affected. How important is support to the patient and family on the receiving end?
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