As a person affected by cancer, have you struggled or been unable to access cancer treatment due to unaffordability or other access challenges? If so, please share your experiences in this survey to inform future advocacy for access to cancer treatment by the Fix the Patent Laws coalition and the Cancer Alliance.

What is the Fix the Patent Laws coalition?

The Fix the Patent Laws coalition is a coalition of 32 patient groups in South Africa seeking reform of South Africa’s patent laws to improve medicine affordability and accessibility in the country. In South Africa, problematic patent laws allow multinational pharmaceutical companies to extend the lives of their patent monopolies for years, and sometimes even decades, after they expire in the other parts of the world – delaying the use of more affordable generic or biosimilar products that are often available outside of the country. Fix the Patent Laws is advocating for legal reforms to prevent patent evergreening in the country. Learn more about Fix the Patent Laws at @FixPatentLaw or fixthepatentlaws.org

What is the Cancer Alliance?

The Cancer Alliance is a collective group of 21 cancer control non-profit organisations and cancer advocates brought together under a common mandate, to provide a platform of collaboration for cancer civil society to speak with one voice and be a powerful tool to affect change for all South African adults and children affected by cancer. Member organisations of the Cancer Alliance work closely with people affected by cancer, often in underserved communities, providing a range of support services. Many of the individuals working or volunteering with member organisations of the Cancer Alliance are cancer survivors themselves. During 2016, the Cancer Alliance joined the Fix the Patent Laws coalition. Learn more about the Cancer Alliance @Cancer_ZA or canceralliance.co.za/

Why cancer medicines?

Fix the Patent Laws seeks to identify and challenge access barriers for all illnesses – however access to cancer medicines is an area of particular concern, given the excessive and rising costs of cancer treatment - coupled with increasing rates of cancer in South Africa and the developing world. Replicating lessons from the HIV movement that secured access to affordable HIV treatment, the Fix the Patent Laws coalition and Cancer Alliance are seeking to improve access to cancer care through challenging undeserved patents and excessive pricing, while simultaneously advocating for adoption of health safeguards into South Africa’s patent laws.

Make your voice heard

As a person living with cancer or cancer survivor, we encourage you to make your voice heard by sharing your experiences of seeking cancer treatment in South Africa. Information collected through this survey will be used to inform future advocacy by Fix the Patent Laws and the Cancer Alliance. Survey responses may be submitted anonymously if preferred. Thank you for taking the time to share your experiences.

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* 1. Please specify the province in which you are being treated (or were previously treated) for cancer

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* 2. Please specify if you are seeking (or previously sought) treatment from 

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* 3. Please specify whether you have medical aid

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* 4. Please specify the type(s) of cancer with which you were diagnosed

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* 5. Have you previously had difficulty or been unable to access cancer medicines/treatment?

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* 6. Please list the names of any cancer medicines/treatment which you have experienced difficulty in accessing or been unable to access 

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* 7. Please indicate whether the challenges that you faced in accessing medicines were related to the following

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* 8. Please provide any additional thoughts or comments related to cancer medicine access in South Africa

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* 9. Would you be willing for us to contact you to discuss your responses further? If so, please provide the following contact information (Contact information will only be used for the purposes of this survey and will not be provided to any third parties)

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