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Help us plan for 2026/27 - Event for people with PoTS

We are currently making plans for 2026/27 and thinking carefully about where our time and resources are best spent.

It’s really important to us that the decisions we make reflect what our community wants and needs. This is why we’d love to hear from you.

We’re considering running an event in November 2026 or early 2027 in Warwickshire, open to all adults (18+) living with PoTS.

The day would include:

  • Educational talks and expert-led sessions
  • Mindfulness and mental wellbeing activities
  • Plenty of opportunities to socialise and connect with others who understand what living with PoTS is like

There would be two ways to take part:

  • In person in Warwickshire (approx £40 per ticket – heavily subsidised- includes food and drink)
  • Attend virtually (approx £20 per ticket – with slightly different content depending on logistics of activities)

Before we make any decisions, we’d like to know whether there’s enough interest in this event and if you think it's the best use of our resource. As a small charity with big goals, we need to make decisions like these carefully. We have limited funds and need to decide whether money should be spent on this or other projects.

Your feedback will really help us make informed decisions about the year ahead. Thank you for taking the time to share your thoughts.
1.Please tell us which option best describes you:
2.Do you have any other comments?
3.Do you know of anyone/businesses who may be willing to sponsor this event? If so, please provide details below.
4.We may use quotes or comments from this feedback on our social media or funding applications. Do you give your consent for us to do so? This would all be anonymised.
5.If you would like to leave your email address so we can contact you about future events, please do so here.
Thank you for taking the time to complete this survey. The best way to stay up to date is to become a member of PoTS UK. It is free to join. Visit: https://www.potsuk.org/become_a_member

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What we do with the information that we gather from survey responses.
In obtaining your cooperation to participate in the survey, we undertake not to mislead you in any way about the nature of the research we are conducting, the way in which the data is collected and the use that will be made of the survey results.
All of the information that you provide will be treated as confidential and will only be used for research purposes. Your comments will not be identified as belonging to you, instead they will be combined with those gathered from other survey participants, and will be analysed as part of a group. We do not use any of the information you provide for direct marketing or other non-research activities.
If we ask you for personal information that enables you to be identified - e.g. your name and e-mail address we will clearly state why we are asking for it and for your permission to use it for that purpose. For example, it might be to inform you of future surveys, to see if you would be happy to share your story or to inform you of future events.
Your participation is voluntary. You are entitled to ask that part, or all, of the record of your involvement in the survey be deleted or destroyed. Please contact enquiries@potsuk.org if this is the case or you have any questions regarding our data privacy.