AFib Wearables and Apps

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* 1. I will be participating as a patient advocate on a panel entitled “The Wearable and Apps: Show Me the Data” at Heart Rhythm 2019 in May 2019. The other panel members, and the workshop audience, are medical professionals in the arrhythmia field.

To help me share a broad patient perspective, I’d greatly appreciate your thoughts on wearable/portable devices/apps that provide AFib-related information. Your input may influence what new devices or apps are developed.

All answers will be held confidential. Survey results will be compiled in an anonymous way to share with the Heart Rhythm 2019 audience. No individual information will be shared.

This survey should take no longer than 10 minutes to complete. This survey will close April 15, 2019.

Thank you very much for your insights. Michele Straube, mstraube@mindspring.com

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* 2. Which type of AFib do you suffer from? (select one)

Paroxysmal (episodes usually stop by themselves)

Persistent (lasts more than a week or stopped by cardioversion)

Permanent (chronic, lasts longer than one year)

I used to suffer from AFib, but have been in normal sinus rhythm (NSR) for over one year

Other (please specify)

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* 3. How long have you been diagnosed with AFib? (select one)

Less than 1 year

1-2 years

3-5 years

More than 5 years

Other (please specify)

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* 4. Do you regularly use any of these wearable/portable devices/apps to provide you with AFib-related information? (choose all that apply)

Handheld (portable) ECG/EKG monitor (e.g., Alivecor, EMAY, AfibAlert, Kardia, ECG Check, etc.)

Wristband heart rate monitor (e.g., Apple Watch 3, , Fitbit, Garmin, Biostrap, etc.)

Wristband ECG/EKG monitor (e.g., Apple Watch 4, Kardia, etc.)

Lead- and wire-free event monitor (e.g., Zio patch, etc.)

No, I don’t use any devices for AFib-related information

Other (please specify)

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* 5. Which brand of device/app do you use? (list all devices/apps you regularly use)

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* 6. What made you decide to regularly use the wearable/portable device/app?

Prescribed by my doctor/cardiologist/EP

My personal decision

If it was your personal decision, please explain WHY you decided to regularly use a wearable/portable device/app.

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* 7. If you do use a wearable/portable device/app, which AFib-related information do you find valuable? (choose all that apply)

Heart rate – instantaneous reading

Heart rate – trends over time (e.g., daily high and low heart rate, resting heart rate, etc.)

Heart rate variability

Heart rhythm (whether you’re in normal sinus rhythm (NSR), AFib, atrial flutter, ectopic beats, etc.)

ECG/EKG (visual heart rhythm strip)

Sleep data (from CPAP)

Sleep data (from device other than CPAP)

Blood pressure

Oxygen saturation

Other (please specify)

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* 8. Does having AFib-related information from your wearable/portable device/app change your behavior? If so, how?

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* 9. Do you share any of the data from your wearable/portable device/app with your doctor? (answer all that apply)

Yes or No

If yes, which data do you share with your doctor? What does the doctor do with that information?

If yes, how do you share the data with your doctor? (e.g., I email it, the device sends it automatically)

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* 10. Think about the AFib-related information you wish you could get from a wearable/portable device/app.

What would you like someone to design for you?

How would this feature/information improve your quality of life and/or change your behavior?

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* 11. Is there anything else you’d like me to share with the Heart Rhythm 2019 audience about wearable/portable devices/apps and AFib-related information?

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* 12. OPTIONAL: Please leave your name and contact information, in case I’d like to follow up on any of your answers. You do not need to answer this question, and I promise not to use your name or contact information for any other purpose.

Name