Welcome to our survey entitled "Motor Symptoms and Perceived Well-Being in Parkinson’s Disease."

We would like ALL individuals with Parkinson's Disease to participate.
Although greater insights about non-motor symptoms in Parkinson's Disease (PD) have occurred over the last couple of decades, motor symptoms remain the diagnostic signature for PD. The cardinal signs of PD include: resting tremor, rigidity, bradykinesia (slow movement), postural instability (balance problems), and walking/gait problems. Although these symptoms in isolation or in combination are defining clinical PD symptoms, they can vary greatly from individual to individual – as it relates to how symptoms may be present and in terms of their intensity, frequency, and progression, and how the symptoms may impact quality of life. 

Although there have been improvements in the management of motor symptoms, it remains of great importance to continue research focused on understanding the experience of motor symptoms through the eyes and voice of the person with PD so we can improve treatment approaches.  Further, it is important to assess the presence of motor symptoms within specific subgroups, including, but not limited to, tremor predominant subgroups and axial-rigid (stiffness and changes in coordination stability) predominant subgroups in relation to age and disease duration, and to evaluate the impact of these symptoms, whether individually or combined, on quality of life. 

The information you provide will benefit individuals with PD and care partners as well as treatment providers so that they can better help you. We encourage your participation but want to emphasize that your participation is completely voluntary and that all information that you provide will be kept strictly confidential.

The data collection for this report will conclude on June 1, 2020.
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Question Title

* 1. Please select "yes" to begin our survey