DO YOU HAVE RISKY GENES?

The intention of this survey is to provide information about the choices and knowledge level of persons affected by hereditary breast and ovarian cancer (HBOC) syndrome.  This information will be compiled and used to form the basis of advocacy programs and to promote emotional and financial support for this cause.

For the purpose of this survey, HBOC syndrome is defined as a proven or assumed inherited genetic mutation that causes higher-than-population risk of breast and ovarian cancer and other related types of cancer, most notably prostate cancer.  We often refer to this condition as 'risky genes' to be more inclusive of men, the many genes and the various types of cancer involved.

Our privacy policy can be viewed at www.hbocsociety.org

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* 1. Sex

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* 2. Age

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* 3. At what point are you in your journey?  You may choose more than one.

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* 4. If you received a positive result for a known mutation, in what gene is your mutation?

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* 5. If you have been diagnosed with hereditary cancer, choose the type and your age at diagnosis.  You can choose more than one option in the case of multiple diagnoses.

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* 6. Check any of the following you WERE NOT AWARE OF prior to taking this survey.

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* 7. Check any of the following that you are AWARE OF that exist in your community (city, town or county).

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* 8. What gaps have you noticed in your health care?

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* 9. Have you felt supported emotionally through your journey to date?  If no, explain.

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* 10. Do you have any questions you would like answered or do you have any comments? (include your contact information to receive answer)

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