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HPA - Youth Advocacy Program
We look forward to hearing from you!
This survey is meant to gather interest from the youth in our hypoparathyroidism community in participating in a youth advocacy program sponsored by HPA.
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1.
Please tell us your name:
(Required.)
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2.
What is your age?
(Required.)
0-9
10-12
13-17
18-20
21+
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3.
In what state do you reside?
(Required.)
Alabama
Alaska
Arizona
Arkansas
California
Colorado
Connecticut
Delaware
District of Columbia
Florida
Georgia
Hawaii
Idaho
Illinois
Indiana
Iowa
Kansas
Kentucky
Louisiana
Maine
Maryland
Massachusetts
Michigan
Minnesota
Mississippi
Missouri
Montana
Nebraska
Nevada
New Hampshire
New Jersey
New Mexico
New York
North Carolina
North Dakota
Ohio
Oklahoma
Oregon
Pennsylvania
Rhode Island
South Carolina
South Dakota
Tennessee
Texas
Utah
Vermont
Virginia
Washington
West Virginia
Wisconsin
Wyoming
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4.
What type of hypoparathyroidism best fits your known or suggested diagnosis?
(Required.)
Post-surgical hypoparathyroidism
Genetic hypoparathyroidism
ADH1
Idiopathic hypoparathyroidism
Pseudohypoparathyroidism
Pseudopseudohypoparathyroidism
Other (please specify)
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5.
Have you shared your story with hypopara before?
(Required.)
Yes, publicly
Yes, but only with friends/family
No, I've primarily kept it to myself and my care team
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6.
What would you look forward to most about being in an advocacy program? (Check all that apply)
(Required.)
Meeting people of a similar age with my condition
Learning how to self-advocate
Learning how to speak to medical professionals about your condition
Learning how to speak to family/friends about your condition
Other (please specify)
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7.
Would you be interested in an advocacy program that is:
(Required.)
Highly structured with benchmarks and goals
Loose, forum-style, with self-guided components
A combination of the above
Other (please specify)
8.
What other comments, suggestions, or goals would you have for this program?
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9.
When is the best time for you to attend a virtual meeting once per month? (Please check all that apply)
(Required.)
Monday evening
Tuesday evening
Wednesday evening
Thursday evening
Friday evening
10.
Will you be attending the 2025 Patient conference?
Yes, In person
Yes, virtually
Not this year-but still interested!
11.
Please share your contact information:
Phone:
Email:
Current Progress,
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