HPA - Youth Advocacy Program

We look forward to hearing from you!

This survey is meant to gather interest from the youth in our hypoparathyroidism community in participating in a youth advocacy program sponsored by HPA.

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1. Please tell us your name: (Required.)

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2. What is your age? (Required.)

0-9

10-12

13-17

18-20

21+

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3. In what state do you reside? (Required.)

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4. What type of hypoparathyroidism best fits your known or suggested diagnosis? (Required.)

Post-surgical hypoparathyroidism

Genetic hypoparathyroidism

ADH1

Idiopathic hypoparathyroidism

Pseudohypoparathyroidism

Pseudopseudohypoparathyroidism

Other (please specify)

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5. Have you shared your story with hypopara before? (Required.)

Yes, publicly

Yes, but only with friends/family

No, I've primarily kept it to myself and my care team

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6. What would you look forward to most about being in an advocacy program? (Check all that apply) (Required.)

Meeting people of a similar age with my condition

Learning how to self-advocate

Learning how to speak to medical professionals about your condition

Learning how to speak to family/friends about your condition

Other (please specify)

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7. Would you be interested in an advocacy program that is: (Required.)

Highly structured with benchmarks and goals

Loose, forum-style, with self-guided components

A combination of the above

Other (please specify)

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8. What other comments, suggestions, or goals would you have for this program?

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9. When is the best time for you to attend a virtual meeting once per month? (Please check all that apply) (Required.)

Monday evening

Tuesday evening

Wednesday evening

Thursday evening

Friday evening

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10. Will you be attending the 2025 Patient conference?

Yes, In person

Yes, virtually

Not this year-but still interested!

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11. Please share your contact information:

Phone:

Email:

HPA - Youth Advocacy Program

We look forward to hearing from you!

Question Title

* 1. Please tell us your name: (Required.)

Question Title

* 2. What is your age? (Required.)

Question Title

* 3. In what state do you reside? (Required.)

Question Title

* 4. What type of hypoparathyroidism best fits your known or suggested diagnosis? (Required.)

Question Title

* 5. Have you shared your story with hypopara before? (Required.)

Question Title

* 6. What would you look forward to most about being in an advocacy program? (Check all that apply) (Required.)

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* 7. Would you be interested in an advocacy program that is: (Required.)

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* 8. What other comments, suggestions, or goals would you have for this program?

Question Title

* 9. When is the best time for you to attend a virtual meeting once per month? (Please check all that apply) (Required.)

Question Title

* 10. Will you be attending the 2025 Patient conference?

Question Title

* 11. Please share your contact information:

1. Please tell us your name: (Required.)

2. What is your age? (Required.)

3. In what state do you reside? (Required.)

4. What type of hypoparathyroidism best fits your known or suggested diagnosis? (Required.)

5. Have you shared your story with hypopara before? (Required.)

6. What would you look forward to most about being in an advocacy program? (Check all that apply) (Required.)

7. Would you be interested in an advocacy program that is: (Required.)

8. What other comments, suggestions, or goals would you have for this program?

9. When is the best time for you to attend a virtual meeting once per month? (Please check all that apply) (Required.)

10. Will you be attending the 2025 Patient conference?

11. Please share your contact information: