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One Rare Experience - Participant Application

One Rare seeks to provide support and opportunities that improve the lives and futures of young adults, aged 18-35, living with rare diseases, through education, mentoring, recreation, and peer engagement. In July 2023,  One Rare is hosting a four day, in-person event in Boston with the theme of “Community Building.” This survey is designed to see if you qualify for the in-person event. If you do, there will be an interview process to learn more about you and your needs to make the in-person event memorable and impactful! If you have any questions, please feel free to put them below or contact us at info@onerare.org.
1.Are you a young adult between the ages of 18 and 35 living with a rare disease?(Required.)
2.What city and state do you live in?(Required.)
3.This event has no cost to attend but may require travel. What assistance, if any, would you need to get to Boston MA?(Required.)
4.Have you attended any of One Rare Experience programs before? (Required.)
5.Which topics are you most interested in? (check all that apply)(Required.)
6.What other community building topics would you like to see in our programs? 
7.Do you need a caregiver to assist with personal care needs?(Required.)
8.If yes, what type of care do you need support with?
(We can discuss this further in the interview process as well)
9.Do you depend on any devices for mobility, feeding, breathing or anything else that we should know about to make you comfortable?(Required.)
10.If comfortable sharing, what rare disease or diseases are you affiliated with?
11.Is there anything else you would like to share with the One Rare Experience Planning Committee?
12.Any questions?
13.What is your full name, Email and Phone number(Required.)