All PRAMS CollaborativeAllprams.orgI enthusiastically nominate our team for the APDU Data Integrity Award for our work to protect and restore the Pregnancy Risk Assessment Monitoring System (PRAMS) in the face of unprecedented federal threats. With the termination of centralized CDC PRAMS infrastructure, states now confront fragmented support and potential cessation of data collection, with existing data now inaccessible, and ongoing erosion of institutional knowledge needed to maintain data quality and consistency.
In response, our team is leading a national convening of 40 stakeholders—including former CDC PRAMS staff, state PRAMS leaders, academic researchers, and nonprofit partners—to confront these risks head-on. Guided by APDU’s principles, we are:
- Creating a national advisory committee and working groups focused on (1) technical assistance to states, (2) logistical and legal infrastructure for sharing PRAMS data, and (3) building support for the continuation of PRAMS at the state and national levels.
- Developing concrete recommendations to sustain rigorous collection, weighting, cleaning, and dissemination of PRAMS data.
- Coordinating with regional efforts and national partners to ensure public, equitable access to high quality, confidential, ethically governed maternal health data over the long term.