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* 1. Name:

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* 2. Email

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* 3. Phone

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* 4. City/Town:

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* 5. Do you have NF?

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* 6. Who is this story about?

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* 7. Age of the NF Hero

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* 8. NF type:

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* 9. When was the NF diagnosis made?

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* 10. Does NF run in your/NF hero's family?

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* 11. If yes, how many generations are affected?

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* 12. How did you and your family feel when the diagnosis was made?

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* 13. Describe how NF affects your day-to-day lives

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* 14. Have you/your NF Hero had any medical complications caused by the condition? How do you manage these?

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* 15. What other non-medical challenges have you/your NF Hero faced since diagnosis?

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* 16. What are your/your NF Hero’s biggest fears?

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* 17. How do you stay positive?

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* 18. Where have you found support on your/your NF Hero’s NF journey?

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* 19. What are your hobbies/interests? Ie, favourite school subject, what you do for work, etc.

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* 20. Share with us a highlight: what have you achieved/milestones have you reached?

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* 21. What advice would you give someone else living with NF?

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* 22. Is there anything else you would like to share?

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* 23. Can we contact you for media opportunities?

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