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NF Hero Stories
1.
Name:
2.
Email
3.
Phone
4.
City/Town:
5.
Do you have NF?
Yes
No
6.
Who is this story about?
Me
My child
Family member
Friend
7.
Age of the NF Hero
8.
NF type:
NF1
NF2
Schwannomatosis
9.
When was the NF diagnosis made?
10.
Does NF run in your/NF hero's family?
Yes
No
11.
If yes, how many generations are affected?
12.
How did you and your family feel when the diagnosis was made?
13.
Describe how NF affects your day-to-day lives
14.
Have you/your NF Hero had any medical complications caused by the condition? How do you manage these?
15.
What other non-medical challenges have you/your NF Hero faced since diagnosis?
16.
What are your/your NF Hero’s biggest fears?
17.
How do you stay positive?
18.
Where have you found support on your/your NF Hero’s NF journey?
19.
What are your hobbies/interests? Ie, favourite school subject, what you do for work, etc.
20.
Share with us a highlight: what have you achieved/milestones have you reached?
21.
What advice would you give someone else living with NF?
22.
Is there anything else you would like to share?
23.
Can we contact you for media opportunities?
Yes
No
Current Progress,
0 of 23 answered
