22q11 Europe. A project supporting adults affected by 22q11.

The survey is targeted at adults affected by 22q11. It will help us to understand your needs and how we can offer support. If you require help completing the survey please ask for assistance.

An objective of 22q11 Europe is to support adults affected by 22q11. Please complete this survey.

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* 1. Please confirm your 22q11 diagnosis

Deletion

Duplication

Distel Deletion

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* 2. What is your age?

18 -25 years

26 -35 years

36- 50 years

51 + years

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* 3. What is your gender?

Female

Male

Prefer not to say

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* 4. What is your country of residence?

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* 5. Are you supported in your living accommodation?

I live independently

I live with my family

I live in a home especially for disabled people

I live in a full-time care home

other (please specify)

Other (please specify)

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* 6. What is your work status?

student

employed

looking for work

home maker

not working due to ill health

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* 7. What are the number of hours you work each week?

I do not work

I work 10 hours or less per week

I work between 10 - 20 hours per week

I work between 20 -30 hours per week

I work over 30 hours per week

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* 8. What type of courses have you studied?

living / vocational skills

skills to do a job, ie apprenticeship

higher level course but below university degree

university degree

other (please specify)

Other (please specify)

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* 9. Do you receive financial assistance from your government due to your disability?

Yes

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* 10. are you able to travel to places easily?

I can travel anywhere independently

I only use local transport near to where I live

I sometimes need support, especially if the journey is unfamiliar to me.

I find travelling very difficult

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* 11. How do you prefer to communicate?

Face to face

Social media accounts

Skype

Zoom

other ( please specify)

Other (please specify)

22q11 Europe. A project supporting adults affected by 22q11.

Question Title

* 1. Please confirm your 22q11 diagnosis

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* 2. What is your age?

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* 3. What is your gender?

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* 4. What is your country of residence?

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* 5. Are you supported in your living accommodation?

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* 6. What is your work status?

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* 7. What are the number of hours you work each week?

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* 8. What type of courses have you studied?

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* 9. Do you receive financial assistance from your government due to your disability?

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* 10. are you able to travel to places easily?

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* 11. How do you prefer to communicate?

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* 12. Which of the following types of help would make a difference to you? Tick all that apply in rank order.

* 12. Which of the following types of help would make a difference to you?
Tick all that apply in rank order.