You are invited to take part in a research project entitled:

“A National Survey of Health and Well-being of Young Adults (YAs) with Cancer in Canada”

This form is part of the process of informed consent. It should give you the basic idea of what the research is about and what your participation will involve. It also describes your right to withdraw from the study. In order to decide whether you wish to participate in this research study, you should understand enough about its risks and benefits to be able to make an informed decision. This is the informed consent process. Take time to read this carefully and to understand the information given to you. Please contact the researcher, Dr. Sheila Garland, if you have any questions about the study or would like more information before you consent.

It is entirely up to you to decide whether to take part in this research. If you choose not to take part in this research or if you decide to withdraw from the research once it has started, there will be no negative consequences for you, now or in the future.

Introduction:
My name is Dr. Sheila Garland and I am an Assistant Professor in the Department of Psychology at Memorial University of Newfoundland.

Purpose of study:
The purpose of this study is to investigate the psychological, social, functional, and physical well-being of young adults (YAs) with cancer across Canada. We intend to compare your answers to a similar age group of YAs in Canada who have not been diagnosed with cancer. We will be collaborating with Young Adult Cancer Canada (YACC) to investigate whether efforts to reduce isolation and connect YAs with cancer improve coping and adjustment. Specifically, we will assess whether frequency and intensity of contact with support from the YACC network influences psychological outcomes. Data obtained from this study will be used to advocate for the needs of YAs with cancer and develop programs to address these issues.

Are you Eligible to Participate?
To be eligible to participate in this study, you must have been diagnosed with any type or stage of cancer after the age of 15 but before the age of 40. You must also currently be 19 year of age or older.

What you will do in this study:
In this study, you will be asked to complete an online survey. Participation involves answering questions about your age, sex, gender, sexuality, living situation, relationship status, ethnic/racial heritage, children, and academic/employment status. You will also be asked about your psychological, social, functional, and physical well-being, your cancer experience, and your involvement with YACC.
Length of time:
Completion of the online survey will take approximately 45-60 minutes.

 
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