INTRODUCTION

In Australia, increasing numbers of Organ and Tissue Donor Families and Recipients are expressing a desire to meet. Presently the only communication allowed between agreeing Donor Families and Recipients is written correspondence that is de-identified, screened and approved via the facilitating donor-transplant organisation. Organisations that facilitate organ and tissue donation and transplantation in Australia prohibit or actively inhibit Donor Family/ Recipient meetings. This is different to the USA, UK and other countries with similar socio-economic status where, once a consenting Donor Family and consenting Recipient are supported to make an informed decision to meet- the donor- transplant organisation enable the meeting. 

Overseas evidence and anecdotal communication in Australia, suggest that mutually agreed Donor Family and Recipient meetings provide significant benefits. These include normalising donation in the community when Donor Families receive first-hand information about the benefit of their donation, and recipients are able to express gratitude and learn about their donor. Evidence suggests many Donor Families and Recipients have a yearning to connect that provides healing and hope when achieved, but, if unmet, contributes to distress. 

It is however important to note that Donor Families Australia remains strongly supportive of those Donor Families and Recipient parties that wish to maintain their privacy which should never be compromised.

As healthcare consumers, we ask the Australian Organ and Tissue Authority (OTA) and its associated organisations to review the regulation, policy and practice that govern this area. We seek an accountable, nationally consistent, compassionately delivered, ethically sound and transparent process to enable mutually consenting Organ and Tissue Donor Families and Recipients to meet.

ALL RESPONSES REMAIN ANONYMOUS.       Please encourage interested parties to partake in this survey. 

This survey will close on the 10th March 2017. The result will be presented to the OTA Forum on the 17th March 2017.

* 1. Please indicate which group you belong to.

* 2. Organ/Tissue Donor Family only to respond to this question.

Should consenting Organ/Tissue Donor Families and consenting Recipients have a right to be supported to meet?

* 3. Recipients only to respond to this question.

Should consenting Organ/Tissue Donor Families and consenting Recipients have a right to be supported to meet?

* 4. Other only to respond to this question.

Should consenting Organ/Tissue Donor Families and consenting Recipients have a right to be supported to meet?

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