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Experiences of BPD/EUPD Support Services in Edinburgh:

This survey is for people in Edinburgh who identify as, or have attracted a diagnosis of, Borderline Personality Disorder (BPD) or Emotionally Unstable Personality Disorder (EUPD).

Who are we?
We are Much More Than A Label. We are a Lothian wide collective advocacy group for and by people who may attract the diagnosis of a personality disorder. In advocacy groups like ours, people with shared identities, experiences and challenges come together to have a stronger voice and take action.

Why are we doing this survey?
Our group members think there are important changes that could be made in Edinburgh to help make services for people with BPD or EUPD better. We would like to know more about how other people with BPD/EUPD have found the services in Edinburgh, and want to use this information to help us show service providers what people say about services and what they need.

How are we using the information collected?
We will summarise it in a report to share with service providers. Your responses will help us understand what is available in Edinburgh, and what is lacking. We hope this will influence provision of services and urge decision-makers to take people's needs into account.

Taking part:
The survey is for those who have used or are using mental health support services in Edinburgh. Taking part is voluntary. You can answer as much or as little as you wish, and you can leave the page if you do not want to continue. Deciding not to take part or withdrawing from the survey will not affect you in any way. Your responses are completely anonymous. By filling in the survey, you indicate you have read and understood the above.

Some of the topics here may be challenging to answer, and bring up difficult emotions. If you would like to share your experiences in another way, or have any questions, please reach out to the group facilitator Alex, at alex@capsadvocacy.org

You can find more about our group, and about Collective Advocacy, at CAP's website here.

Thank you for your time!

CAPS Independent Advocacy is a Scottish Charitable Incorporated Organisation. Scottish Charity Number: SC021772
1.Do you have a diagnosis of either BPD or EUPD?
2.If you have received a diagnosis, how was your experience of being diagnosed (e.g. how long did it take, how were you referred, what was the process like for you) ?
3.If you have not received a diagnosis, can you tell us why?
4.1. Have you been able to access services in Edinburgh that have helped with your BPD/EUPD symptoms?
5.How effective do you think services for BPD/EUPD in Edinburgh have been for you?
6.Have you been offered any of the following services in Edinburgh in the last two years? (Tick all that apply)
7.Have you been put on a waiting list for mental health treatment related to your BPD/EUPD?
8.What sort of attitudes have you experienced from professionals around your BPD/EUPD? Please feel free to share specific examples.
9.Please tell us anything you would like to about your experiences of services for BPD/EUPD in Edinburgh, including trying to access them.
10.Have you ever accessed any of these ‘crisis’ mental health services in Edinburgh? (Tick all that apply)
11.Is there anything else you would like to tell us about how you access crisis support? e.g. how often you use them, how helpful they are.
12.Do you feel you might access crisis services less if you had improved access to community based support?
13.What do you think would be good to provide or increase access to in Edinburgh for people with EUPD/BPD? (Tick all that apply)
14.How do you think services for people with BPD/EUPD should be evaluated? e.g. patient survey, data on reduction of symptoms, etc.
15.Has your mental health been affected by the lack of services currently available in Edinburgh?
16.Do you feel that you have received the mental health support you need from services in Edinburgh for your BPD/EUPD?
17.Please tell us anything else you would like too.
18.Where did you see this survey advertised? (This helps us reach as many people as possible).
19.If you would like to learn more about Much More Than A Label Collective Advocacy group or be kept informed about the progress of this project, please leave your email below and the group facilitator will be in touch.
Thank you very much for taking the time to complete our survey.

If you would like to learn more about getting involved with Collective Advocacy in Edinburgh and the Lothians, for and by people who may attract a diagnosis of a personality disorder, please email the group facilitator Alex at alex@capsadvocacy.org