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Healthcare Experiences of Individuals With Pelvic Pain

Survey Information

You are invited to participate in a research study conducted by Lila Bartkowski-Abbate, PT, DPT, a faculty member in the Doctor of Physical Therapy Program at Long Island University.

This study involves research and is being conducted to fulfill academic and scholarly requirements.

The purpose of this research is to examine the experiences of individuals with pelvic pain, including timelines to diagnosis, types of clinicians involved in care, and pathways used to access treatment and your out-of-pocket costs associated in getting care.

Participation is voluntary, no identifying information will be collected, and you can stop this study at any time. The survey asks about your symptoms, diagnostic experiences, and health-care access and takes approximately 6 minutes to complete.

Thank you for your participation in this study and moving forward the care of those who suffer with pelvic pain.
1.How old are you?(Required.)
2.Do you currently have, or have you ever had, pelvic pain that a health professional said was a specific diagnosis (e.g., chronic pelvic pain, endometriosis, interstitial cystitis/painful bladder syndrome, pelvic floor muscle dysfunction, etc.)?
3.What was your sex assigned at birth?(Required.)
4.Which type of community do you live in?(Required.)
5.Have you ever received a formal diagnosis related to your pelvic pain?
6.How long did it take from when you first noticed pelvic pain symptoms to receiving a diagnosis (if ever)?
7.About how old were you when you first noticed pelvic pain?(Required.)
8.About how old were you when you received a diagnosis for pelvic pain?(Required.)
9.Before you received a diagnosis, which types of health professionals did you see for your pelvic pain? (Select all that apply.)
10.Which professional FIRST gave you your pelvic pain diagnosis?
11.Which types of providers have helped you the MOST with pelvic pain? (Select all that apply.)
12.Which diagnostic tests have you undergone for pelvic pain? (Check all that apply.)
13.How many of these tests do you feel were helpful in reaching your diagnosis?
14.Were you ever referred to pelvic floor physical therapy?
15.Who referred you?
16.At what point in your pelvic pain journey did you start pelvic PT?
17.If you went to pelvic PT, how did you learn about it? (Select all that apply.)
18.Did pelvic PT reduce your symptoms?
19.At the time you were diagnosed, what type of health coverage did you have?
20.How did you pay for the first visit with the provider who diagnosed your pelvic pain?
21.How did you pay for continued care for pelvic pain?
22.What treatments have you paid out-of-pocket for? (Check all that apply.)
23.Approximately how much have you spent out-of-pocket for pelvic pain care (total)?
24.How satisfied were you with the medical care (insurance-based system) you pursued for your pelvic pain?
Very satisfied
Satisfied
Neutral
Dissatisfied
Very dissatisfied
25.How satisfied are you with the out-of-pocket care you pursued for pelvic pain?
Very satisfied
Satisfied
Neutral
Dissatisfied
Very dissatisfied