Planning for caregiving

Little is known about how prepared individuals are when they take on caregiving roles. I am asking you to do this survey to learn more about what planning (if any) people do when stepping in as caregivers. Please complete this survey if you expect to become a caregiver, are currently a caregiver, or were a caregiver in the past.

All data collected from the surveys will be analyzed in the aggregate, so all respondents will be non-identifiable.

Thank you so much for completing this survey!! If you have any questions, please reach out to me, Dr. Julie Norstrand at Julie@helpmyagingparents.net

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1. Which one of these scenarios best describes you?

I expect to become a caregiver in the near future (1-12 months)

I expect to become a caregiver in the more distant future (1+ years)

I expect to become a caregiver but don't know when

I am currently a caregiver

I do not expect to become a caregiver

Other (please specify)

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2. Who do you expect to become (or were) a caregiver for? (Check all that apply)

A parent

A spouse

Another relative

Friend / Neighbor

Other (please specify)

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3. How worried / anxious are (or were) you about expecting to become a caregiver? (0 = least worried)

100

Clear

i We adjusted the number you entered based on the slider’s scale.

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4. Have (or did) you do any planning for your role as a caregiver?

Yes, a lot

Yes, a little

None

Other (please specify)

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5. If you answered yes to Q4, please describe what kind of planning you have done. (Check all that apply) (Required.)

Financial overview (Determine what care they can afford)

Financial cost to caregiver (Determine how much caregiving will cost you)

Health overview (Determine their chronic health conditions, mental and emotional status)

Housing options (Determine if they want to remain in their own home or move)

Transportation options (Determine what is available if they can no longer drive)

Developing a support team (Determine who can provide assistance)

Other (please specify)

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6. Where did you get information when planning for caregiving? (Check all that apply)

Employer eldercare benefit (EAP)

Aging service network (Senior Center, Council on Aging, etc.)

Eldercare consultant

Healthcare provider

Faith-based organization

Family

Friends / Neighbors

Internet

Television / Radio

Other (please specify)

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7. If you haven't done any planning, why is that? (Check all that apply)

No time to gather information

No idea where to start

Do not feel I need to

Too uncomfortable topic to start thinking about

Procrastination

Other (please specify)

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8. What could help you start to look into what caregiving entails? (Check all that apply)

If your Employer Assistance program was more accessible / user friendly

If you felt your employer was more supportive

Trainings at work (e.g., Lunch n' Learns, Live webinars, etc)

Community Education classes

Speak to an eldercare consultant

Speak to your care-recipient

Speak to your family

Speak to a friend / neighbor

Speak to someone who has already been a caregiver

If information on the internet was easier to navigate

Other (please specify)

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9. If you have already been a caregiver what advice would you give someone who has never been a caregiver but knows that they will need to care for someone in the future?

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10. What is your status:

Fully employed

Part-time employed

Retired

Other (please specify)

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11. What state do you live in?

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12. Your age category

45-54

55-64

65-74

75+

Other (please specify)

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13. Your gender

Male

Female

Do not wish to answer

Other (please specify)

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14. Do you live with your care recipient?

Yes

Other (please specify)

Planning for caregiving

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1. Which one of these scenarios best describes you?

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2. Who do you expect to become (or were) a caregiver for? (Check all that apply)

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3. How worried / anxious are (or were) you about expecting to become a caregiver? (0 = least worried)

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4. Have (or did) you do any planning for your role as a caregiver?

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5. If you answered yes to Q4, please describe what kind of planning you have done. (Check all that apply) (Required.)

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6. Where did you get information when planning for caregiving? (Check all that apply)

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7. If you haven't done any planning, why is that? (Check all that apply)

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8. What could help you start to look into what caregiving entails? (Check all that apply)

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9. If you have already been a caregiver what advice would you give someone who has never been a caregiver but knows that they will need to care for someone in the future?

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10. What is your status:

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11. What state do you live in?

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12. Your age category

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13. Your gender

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14. Do you live with your care recipient?

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15. If you do not live with your care recipient, please indicate how far they live from you (in miles)

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16. Any comments / questions:

Planning for caregiving

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* 1. Which one of these scenarios best describes you?

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* 2. Who do you expect to become (or were) a caregiver for? (Check all that apply)

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* 3. How worried / anxious are (or were) you about expecting to become a caregiver? (0 = least worried)

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* 4. Have (or did) you do any planning for your role as a caregiver?

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* 5. If you answered yes to Q4, please describe what kind of planning you have done. (Check all that apply) (Required.)

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* 6. Where did you get information when planning for caregiving? (Check all that apply)

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* 7. If you haven't done any planning, why is that? (Check all that apply)

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* 8. What could help you start to look into what caregiving entails? (Check all that apply)

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* 9. If you have already been a caregiver what advice would you give someone who has never been a caregiver but knows that they will need to care for someone in the future?

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* 10. What is your status:

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* 11. What state do you live in?

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* 12. Your age category

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* 13. Your gender

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* 14. Do you live with your care recipient?

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* 15. If you do not live with your care recipient, please indicate how far they live from you (in miles)

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* 16. Any comments / questions:

1. Which one of these scenarios best describes you?

2. Who do you expect to become (or were) a caregiver for? (Check all that apply)

3. How worried / anxious are (or were) you about expecting to become a caregiver? (0 = least worried)

4. Have (or did) you do any planning for your role as a caregiver?

5. If you answered yes to Q4, please describe what kind of planning you have done. (Check all that apply) (Required.)

6. Where did you get information when planning for caregiving? (Check all that apply)

7. If you haven't done any planning, why is that? (Check all that apply)

8. What could help you start to look into what caregiving entails? (Check all that apply)

9. If you have already been a caregiver what advice would you give someone who has never been a caregiver but knows that they will need to care for someone in the future?

10. What is your status:

11. What state do you live in?

12. Your age category

13. Your gender

14. Do you live with your care recipient?

15. If you do not live with your care recipient, please indicate how far they live from you (in miles)

16. Any comments / questions: