In 2014, the Harnett Grant was founded by Mr. Michael Harnett, as an enduring memorial to his nephew, Brendan Michael Harnett. Brendan was diagnosed with infantile spasms and passed away before his first birthday. The Child Neurology Foundation gratefully partners with the Harnett family again this year to honor Brendan through the offering of one $1,000 grant to assist families living with infantile spasms.

In addition, CNF proudly introduces the 2019 RISE Family Grants. This year, with support from our Infantile Spasms Action Network (ISAN) partners, CNF is offering ten $1,000 grants to families living with infantile spasms.

The Harnett and RISE Family Grants are intended to help families by offsetting expenses that may only be partially covered by insurance or not at all. In the past, families have utilized these grants for items such: durable medical equipment, assistive technology, therapy services, respite care, etc.

Eleven families will be chosen at random. Applications due November 8, 2019 by 8am CT.

Selected families will be notified in advance of Infantile Spasms Awareness Week, December 1-7, 2019.

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* 1. Name of child with infantile spasms

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* 2. Name of parent/guardian applying for grant

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* 3. Email address

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* 4. Phone number

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* 5. City, State

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* 6. Child's date of birth (month/year)

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* 7. Age of child when diagnosed with infantile spasms

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* 8. Type of doctor who gave you the IS diagnosis. For example: neurologist, pediatrician, family doctor

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* 9. Would you share a bit about how your child’s IS diagnosis has impacted your family?

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* 10. Tell us what you’d like to use the grant for and how it would help your family

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* 11. I confirm that the service/item described is NOT covered or fully-covered by our insurance

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* 12. Will you share a photo of your child? (This is optional and if you upload a photo, expect an email from Allyson Eyermann seeking your release to use your child's photo in CNF awareness efforts)

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* 13. From your perspective as a parent of a child with IS, would you be willing to share your story with the broader child neurology community? If so, how would you feel comfortable sharing your story? (i.e. blog, social media post, interview)

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* 14. Please type your name below to confirm that everything you have provided on this application is true and accurate.

Thank you and please direct any further communication to:

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