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NCODA Patient Advocacy Hub Needs Assessment Survey

Estimated completion time: 3–5 minutes. Responses will be used to guide development of the NCODA Patient Advocacy Hub and related educational resources.

Thank you for taking a few minutes to complete this survey. Your feedback will help NCODA better understand how oncology practices engage with patient advocacy organizations and identify the resources and tools that would be most valuable within a future NCODA Patient Advocacy Hub.
1.Your Name and Practice(Required.)
2.What best describes your primary role? (Select one)(Required.)
3.Which best describes your practice setting? (Select one)(Required.)
4.Approximately how many oncology providers practice at your primary site? (Select one)(Required.)
5.Please list the patient advocacy organizations your practice engages with. Examples: American Cancer Society, CancerCare, Blood Cancer United, PanCAN, FORCE, Cancer Support Community, local cancer support organizations, etc.(Required.)
6.How does your practice currently engage with patient advocacy organizations? (Select all that apply)(Required.)
7.To what extent do the following factors limit your practice's engagement with patient advocacy organizations?(Required.)
Not Valuable
Slightly Valuable
Moderately Valuable
Very Valuable
Extremely Valuable
Lack of awareness of available advocacy organizations
Difficulty identifying trusted and reputable resources
Limited staff time or capacity
Unclear referral or connection process
Lack of readily available educational materials
No centralized directory of advocacy resources
Uncertainty about the services advocacy organizations provide
Communication or coordination challenges
Limited patient awareness, interest, or utilization
Lack of disease-specific advocacy resources
8.How valuable would the following resources be to your practice as part of an NCODA Patient Advocacy Hub?(Required.)
Not Valuable
Slightly Valuable
Moderately Valuable
Very Valuable
Extremely Valuable
Curated directory of patient advocacy organizations
Disease-specific advocacy organization contacts
Patient-friendly educational materials
Referral workflows and implementation tools
Webinars or continuing education programs
Downloadable patient discussion guides
Financial assistance and support resources
Survivorship and wellness resources
Clinical trial education and support resources
Best practices and case studies from other oncology practices
Opportunities to connect and collaborate with advocacy organizations
9.If NCODA could prioritize only three resources for initial development, which would be most valuable to your practice? (Select up to 3)(Required.)
10.In which disease states would additional patient advocacy resources be most valuable for your practice? (Select up to 5)(Required.)
11.What is one resource, tool, or service you wish existed to help connect your patients with advocacy and support resources?(Required.)
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