SIA's Frank Williams Academy logo which says FWA in 2 shades of blue, and has Frank Williams Academy written next to it. Below this, it says Powered by Spinal Injuries Association in red.

What Matters? 2026

Welcome

Thank you for taking the time to complete this survey. It should take no more than 20 minutes and will make a real difference to how we support people with a spinal cord injury (SCI).


The 'What Matters?' survey provides invaluable information about issues specifically related to people living with a spinal cord injury, their families, and the professionals that provide their care. Your responses help direct our work at SIA - from what campaigns we run to the kind of services we offer, allowing us to make changes when and where they are needed. Last year we received over 900 responses to the survey, providing us with invaluable insight into the mind, body and life issues that matter most.


So, tell us! What should we be expanding? What should we be fighting for on your behalf? Your stories are at the centre of what we do, and your responses will help shape the service we offer.
Thanks to your feedback over the past three years, we’re coming to the end of our two-year Travel with Confidence project, which led to the launch of our Travel Hub. Additionally, we are collaborating on a research project specifically around mental health support for those with SCI in the coming years and published a National SCI strategy – a collaborative effort with the leading SCI charities to address the inconsistent rehabilitation pathways, fear of health and care settings, and barriers to accessing appropriate expert care. In addition to this, we’ve launched our Spotlight events – sessions led by experts and those with lived experience, for those with spinal cord injury. So far, we’ve delivered skin, bladder and travel sessions, with more to come!


Last year, we heard from you that accessibility of general medical services and testing was a top priority, half of you experienced issues returning to work, and nearly two-thirds of you have struggled with mental health challenges. We’ve been working to create mental health training for healthcare professionals and working with GPs to improve community care for people with spinal cord injury. Your responses have helped shape our campaigning, our services, our education, and our research efforts – and your responses in 2026 will continue to tell us how we can help you to live a fulfilled life.


Thank you again and feel free to share with anyone affected by a spinal cord injury (other spinal cord injured people, their families, and fellow healthcare professionals).


Any questions, at any time, please contact academy@spinal.co.uk

If you require this survey in a different format or language, please contact us at sia@spinal.co.uk


Please carry on the conversation on social media – tag us on X (formerly known as Twitter) @spinalinjuries Instagram @spinal_injuries and Facebook Spinal Injuries Association using the hashtag #WhatMatters.
Disclaimer:
AI will be used to aide with the analysis of answers to help SIA make sure we can get the most information out of your responses. If you have any questions about this, please contact us at academy@spinal.co.uk