Adult Guide Survey
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First Name
(Required.)
*
Last Name
(Required.)
*
Primary Email Address
(Required.)
*
Connection to CF
(Required.)
I am a person with CF
I am a parent of a person with CF
I am a grandparent of a person with CF
I am a spouse/partner of person with CF
I am a sibling of a person with CF
Other (please specify)
How did you hear about the Adult Guide?
CFF.org
Social Medai (Facebook, Twitter, etc.)
From a friend
Community Voice email
Other (please specify)
Which portions of the Adult Guide are of interest to you?
Have read
Would like to read
May reference someday
Will never use
Basics of Lung Care
Have read
Would like to read
May reference someday
Will never use
Sinusitis and CF
Have read
Would like to read
May reference someday
Will never use
NTM
Have read
Would like to read
May reference someday
Will never use
Lung Transplant
Have read
Would like to read
May reference someday
Will never use
Basics of Digestive Tract
Have read
Would like to read
May reference someday
Will never use
DIOS
Have read
Would like to read
May reference someday
Will never use
Gastroesophageal
Have read
Would like to read
May reference someday
Will never use
Improving Nutrition with Tube Feedings
Have read
Would like to read
May reference someday
Will never use
CF-Related Diabetes
Have read
Would like to read
May reference someday
Will never use
Basics of Infection Control
Have read
Would like to read
May reference someday
Will never use
Vascular Access Devices
Have read
Would like to read
May reference someday
Will never use
Anxiety and Depression
Have read
Would like to read
May reference someday
Will never use
Basics of CF and Male Infertility
Have read
Would like to read
May reference someday
Will never use
Birth Control for Women with CF
Have read
Would like to read
May reference someday
Will never use
Pregnancy in CF
Have read
Would like to read
May reference someday
Will never use
Menopause in CF
Have read
Would like to read
May reference someday
Will never use
Day-to-Day Time Management
Have read
Would like to read
May reference someday
Will never use
Eating on the Go
Have read
Would like to read
May reference someday
Will never use
Exercise with CF
Have read
Would like to read
May reference someday
Will never use
Having a Fabulous Social Life
Have read
Would like to read
May reference someday
Will never use
Traveling with CF
Have read
Would like to read
May reference someday
Will never use
Parenting as an Adult with CF
Have read
Would like to read
May reference someday
Will never use
Finding Community Support
Have read
Would like to read
May reference someday
Will never use
Managing Home Care
Have read
Would like to read
May reference someday
Will never use
Changing Care Centers
Have read
Would like to read
May reference someday
Will never use
Participating in CF Clinical Trials
Have read
Would like to read
May reference someday
Will never use
Is there anything that is missing from the Adult Guide?
Would you talk to or share with your care team or health care provider about what you read in the Adult Guide?
Yes
No
On a scale of 0 to 10,
How likely is it that you would recommend the Adult Guide to a friend or colleague?
0 for Not at all likely, 10 for Extremely likely
Not at all likely
Extremely likely
0
1
2
3
4
5
6
7
8
9
10
Are there any topics specific to living with CF as an adult, that you would like to learn more about?
Do you have any other feedback about the Adult Guide?
