Help shape the future of delirium research in the UK

We need to do more research to help people with delirium in the best way. In our survey we will ask people across the UK where research should focus. Your ideas will help to improve the care of people with delirium.

Delirium is:
A condition that makes people feel very confused or drowsy. It is usually caused by an illness or an operation. Delirium can make it hard to remember things and changes people’s behaviour. People may see or hear things that are not there and become very frightened and distressed. Other people can become quiet and sleepy which makes it difficult to spot. Delirium is common in older people but can affect people at any age. It can happen anywhere—at home, in a care home, or in hospital. Delirium can start quickly, in just a few hours or days, and can come and go. People may not always know they have delirium as it can be hard to recognise. When the underlying cause of the delirium gets better, delirium often goes away too, but sometimes it can last longer.

If you’d like to know more here’s a video that explains more information about this illness:

https://www.youtube.com/watch?v=7NA6iJJdsK8
Who should take part in this survey
  • People who have experienced delirium or people who are at risk of, or worried about experiencing delirium​ in the future
  • People who have cared for a family member or friend with delirium, or are close to someone who is at risk, or worried about experiencing delirium ​
  • Health and social care professionals who have cared for someone who has experienced delirium, or who care for individuals who are at risk, or are worried about experiencing delirium​
You must live in the UK and be over 18 years old to take part.
Participant information

We need to identify gaps in knowledge so we can focus research on improving our care and understanding of delirium. You can help by answering a short survey. It takes about 15 minutes.

You can choose how much you want to share. When you submit the survey, it means you agree to take part.

At the end, you can tell us if you want to:
  • Help with the next part of the priority setting process
  • Hear what we find out
All contact details will be kept confidential and secure, in accordance with General Data Protection Regulation (GDPR). We will not publish your details, and they will not be linked to your responses on this survey. We will not use your details for any purpose other than inviting you to take part in the next stage.
Who is supporting this Priority Setting Partnership?

This priority setting partnership is funded by the Academic Institute of Health Ageing (ACHA) which is a collaborative project between Barts Health NHS Trust, Queen Mary University of London and Barts Charity and supported by the James Lind Alliance, a non-profit initiative based in England (https://www.jla.nihr.ac.uk/), hosted by the National Institute for Health and Care Research (NIHR).
Who can I contact for more information?

This priority setting partnership is led by Professor Elizabeth Sampson and Professor Emma Vardy.

If you would like further information, please contact:

Dr Alexandra Feast, Project Coordinator and Information Specialist, a.feast@qmul.ac.uk, Academic Centre for Healthy Ageing, First Floor, Junction 2, Whipps Cross Hospital, Whipps Cross Road, Leytonstone, London, E11 1NR
 
 17% of survey complete.

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