The NBIA Disorders Association wants to hear from you!
Help us to identify the most pressing mental and physical health issues that NBIA patients and their caregivers face every day. Understanding you and your daily challenges can help us support you as we plan our family conference and set goals for the next five years.
This survey is just 8 questions and should take less than 10 minutes to complete. The questions are designed to be thought-provoking and open-ended. Stories of personal struggles with NBIA and the impact it has on your life will help us set the priorities, so please feel free to elaborate and answer as many questions as you can.